One in a billion: A boy's life, a medical mystery
On a Saturday morning in June, when his children are at piano lessons and the Whitefish Bay house is quiet, pediatrician Alan Mayer composes the e-mail he hopes will persuade a colleague to try a costly new technology. He has been shaping the argument in his mind - the chance to take the first steps into the future of medicine and maybe save the life of a very sick little boy.
"Dear Howard - I hope you are well," he writes, addressing Howard Jacob, director of the Medical College of Wisconsin's Human and Molecular Genetics Center. "I'm writing to get your thoughts on a patient of mine . . . "
Nicholas Volker is a short, blue-eyed4-year-old who loves Batman and squirt gun fights and steak - on the rare occasions when he's not restricted to a feeding tube.
- Hospital Groups Strike Back at Hospital Rating Systems
- AHIP: Enormity of HIX Challenges Sinks In
- The Secret to Physician Engagement? It's Not Better Pay
- 5 Hot Healthcare Ideas from SXSW
- Another SGR Patch Likely, Lawmaker Says
- How Succession Planning Boosts Employee Retention Rates
- 4 Reasons PCMH Principles Aren't Going Away
- Two-Midnight Rule Must be Fixed or Replaced, Say Providers
- Don't Underestimate Emotional Intelligence
- Rules to Rein in HIX Narrow Networks Could Drive Away Payers