Crowdfunded searches for medical miracles
Mainstream medicine hasn't focused its resources on the 7,000 rare diseases that have baffled doctors for decades and afflict a combined 350 million people worldwide. Jimmy Lin, a genomics researcher at the Washington University School of Medicine, believes answers may lie in their genes. To find out, he and more than a dozen other young scientists and researchers created the Rare Genomics Institute, a nonprofit that leverages falling DNA sequencing costs and rising online giving to support medical research. On the institute's website, children with mysterious illnesses can solicit the $7,500 needed to sequence their genes and their parents' in search of new therapies.
- CFO Exchange: Smartphones Poised to Disrupt Healthcare, Says Topol
- How Digital Strategy Shapes Patient Engagement at Boston Children's Hospital
- Half of All Primary Care, Internal Medicine Jobs Unfilled in 2013
- CNO on Hospital Redesign: 'You Can't Over-Communicate'
- Consumerism Drives Healthcare Branding, Rebranding Efforts
- Carondelet to Pay $35M to Settle Fraud Allegations
- PA Ranks See 'Phenomenal Growth,' Lack of Diversity
- Some Cancer Hospitals' Quality Data Will Soon Be Public
- 3 Traits Personality Assessments Can't Reveal
- CA Powers Up $80M HIE to 'Create Value in the Data'