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TennCare patient wins experimental treatment as rare disease worsens

The Tennessean, May 27, 2008

After about two years of battling TennCare to pay for an experimental treatment, a judge has ordered that a patient with a rare and painful disease receive care. TennCare, Tennessee’s insurance plan for the poor and disabled, has decided not to appeal. The could potentially impact thousands of others with rare diseases across the country, experts say.