Excellence Through Self-Administration
Qualify for a free subscription to HealthLeaders magazine.
This article appears in the April 2012 issue of HealthLeaders magazine.
It was a wonderful and rare accomplishment. In 2008, a 23-year-old woman with severe cystic fibrosis successfully carried and delivered a healthy, full-term baby girl at Long Island Jewish Medical Center, in New Hyde Park, NY. Despite that major achievement, the complex regimen of daily medications that Christina Marie McDonald needed to manage her disease created challenges.
"On the maternity ward, no one understood anything about CF," says Ruben Cohen, MD, director of the adult CF program and codirector of the asthma center for the 888-bed tertiary care teaching hospital. "She didn't receive her medications when she needed them."
The circumstances of McDonald's delivery served to highlight an issue that hospital personnel had already begun to grapple with for adult patients with CF: how to deliver the same quality of care in the hospital that patients routinely administer themselves at home.
"After that experience, the patient's father wrote a letter asking, ‘Why does the hospital tie our hands and put these routine measures in the hands of busy medical personnel when the patients and their families know the illness very well and are experts in their own care?'" explains Fatima Jaffrey, MD, director of outcomes research at LIJ Medical Center.
- CDC Warns of Antibiotic Overuse in Hospitals
- Don't Underestimate Emotional Intelligence
- Two-Midnight Rule Must be Fixed or Replaced, Say Providers
- The Secret to Physician Engagement? It's Not Better Pay
- Care Coordination Tough to Define, Measure
- SCOTUS Review of NC Board Case 'A Very Big Deal' to Providers
- Yale New Haven Health Partners with Tenet Healthcare in CT
- Physicians Take SGR Repeal Message to Washington
- Size Matters in Antibiotic Overuse
- Evidence-Based Practice and Nursing Research: Avoiding Confusion