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Patients crusade for access to their medical device data

NPR, May 30, 2012

Each year, tens of thousands of Americans are implanted with tiny battery-controlled devices that regulate the beating of their hearts. But some patients, like Hugo Campos of San Francisco, fear they're being kept out of the loop. Those devices transmit streams of medical data directly to doctors. That's because even though Campos' ICD can wirelessly transmit data twice a day about his heart and the ICD itself, that information goes only to his doctor. Campos has to make an appointment and ask for a printout. And that, he says, just doesn't seem fair. This has become his crusade, and that of a growing movement of people who call themselves "e-patients."