Disconnected Health Data 'Beyond Absurd,' Says Innovator and Patient
McCollister-Slipp is not content to merely advocate for these changes, or even merely to develop innovative new analytics tools. She also epitomizes the movement of "quantified self" patients who measure every possible health data point they can to help manage their diseases.
McCollister-Slipp has four medical devices on her around the clock. Two are literally attached to her body. One is a continuous glucose monitor, and another is an insulin pump. A third is a SymlinPen, a biologic-in-a-pen she uses to control glucose at mealtime. The last one is a second glucose monitor, which provides auxiliary readings.
Still, McCollister-Slipp cannot see relevant patterns in the data from the combined data outputs of all these devices – because they are not available for analysis outside of each one's closed data system.
"You still have to hand-write most of the stuff," she says. "It's beyond absurd."
McCollister-Slipp also has chronic kidney disease, and must monitor her blood pressure with a wireless blood pressure monitor. She also has a body analysis scale which tells her about her bone mass as a portion of her body, as well as her level of hydration. Finally, she has a fitness tracker device, to keep tabs on her activity level as she hits the gym or heads out for a walk.
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