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Health 2.0: ONC Pledges to Make Patients Meaningful Users, Too



In developing health information technology programs and policies, the government has not paid enough attention to patients, concedes a top official of the Office of the National Coordinator for Health IT. That may be about to change.



1 comments on "Health 2.0: ONC Pledges to Make Patients Meaningful Users, Too"
@cascadia Sherry Reynolds (9/29/2011 at 2:10 PM)

Actually one of the leading epatient advocates who actually works in health IT - along with Rob Koldner the then head of ONC and some ONC staffers created the position for a national consumer patient advocate but when he left and David Blumenthal, MD was brought in it got put on hold for almost 2 years. David even asked where in the funding legislation (ARRA and HITECH) did it mention a "program" for patients - instead of realizing that everything we do should start with their needs and that patient centered care is a core principal of everything and has been clearly articulated as not only one of the IOM pillars of care but as Berwick (IHI, CMS) has said the foundational piece. ONC missed the chance to embed the patient voice and patient centered design principals in all of their programs and are now playing catchup instead. Unfortunately this can be challenging when the consumer piece is being lead by ONC policy people and lawyers (ie - consumer rep at NeHC) who have never worked in healthcare nor run grass roots political campaigns let alone understand health IT and how transformative it can be. What they need are people who understand grass roots campaigns vs policy as well as people who use and understand technology. In the end however it isnt about "freeing" data or technology but using those tools to design care around the patient.