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ONC Takes on Patient Engagement in HIT

The federal Office of the National Coordinator launched a program to determine "whether and when" providers can share patients' data. ONC's Office of the Chief Privacy Officer has engaged a health information technology contractor to identify best practices to overcome some of the challenges of exchanging health data, including privacy, security, and accuracy of records.

2 comments on "ONC Takes on Patient Engagement in HIT"
Barbara Wilson (10/7/2011 at 1:33 PM)

Thank you, Naomi. Well said and very true.
Naomi Giroux (10/7/2011 at 10:15 AM)

I have two points to make. First is a review of how HIPPA Regulations are being used to keep patients and their families out of the center of information and decision making. Often as patients and their advocates/caregivers try to get enough information to make decisions they are stonewalled. Electronic records could be used as yet another barrier for consumers. Second, I'd suggest more review of the studies about the lack of information sharing be conducted based on your statement. "There is little research as to whether patients are adequately informed to understand the choices they make with respect to sharing health information, ONC says, while studies show that efforts to collect informed consent for treatment from patients are often inadequate and have little educational value."