ECRI Resuscitates Healthcare Clearinghouse Data

The nonprofit healthcare researcher and repository is building a website that will replicate much of the data found on the now-defunct National Guidelines Clearinghouse.  

The ECRI Institute will step in to provide critical healthcare data that otherwise became unavailable this week when the federal government's National Guidelines Clearinghouse fell victim to the budget axe.

Karen M. Schoelles, MD, a senior director at ECRI Institute, said the Plymouth Meeting, Pennsylvania-based nonprofit stepped in after the Agency for Healthcare Research and Quality announced that the NGC website would shut down on July 17.

She said ECRI has the opportunity to replicate much of NGC's vast trove of evidence-based medical research and guidelines because it has played an ongoing role in the development and maintenance of the database since its inception in 1998.

"Much of the information will be similar, but our site will not be a replica of the site created for AHRQ," Schoelles said in an email to HealthLeaders Media.

"We are doing this because we believe the work we did for AHRQ was valuable to the healthcare community," she said. "ECRI's mission is to advance evidence-based health care globally, and we see this as a way to support that mission."

Schoelles said ECRI is developing the replacement database "without support or input from AHRQ" but with a plan to "simplify presentation of the information and use more visual means of communication."

"Eventually we will develop tools to help people put evidence-based recommendations into practice," she said.

ECRI is also contacting guideline developers and requesting permission to include their data on the website.

"We know already that some of the organizations whose guidelines were on the AHRQ Clearinghouse website are happy to share their information with us," Schoelles said.

"Once they share their guidelines with us, we will summarize them and evaluate them against the National Academy of Medicine's criteria for trustworthy guidelines," she said.

Budget Cuts
 

AHRQ spokesperson Alison Hunt said the NGC website was forced to shut down on July 17 after funding was reduced from $2.1 million to $1.2 million. Hunt said it's not clear if the shutdown will be permanent.

"We are exploring options to sustain the NGC and will share more information when it becomes available," Hunt said.

The American Hospital Association this week urged AHRQ to reconsider the NGC shutdown, calling the database "a valuable resource to clinicians and healthcare organizations in the United States and across the world for two decades."

"It provides easy access to evidence-based guidelines for practice, helping busy clinicians develop plans of care for patients, allowing healthcare organizations to create standard protocols for practice, embed decision support for their clinicians, and reduce practice variation to ensure the best outcomes for their patients," AHA said.

AHRQ acknowledged in a statement on its website that the decision to close the NGC, which had been getting about 200,000 hits each month, has "elicited significant feedback from the healthcare field."

"The Agency appreciates the passionate support that users have expressed. AHRQ is exploring options to support the NGC in the future and will continue to do so even while the site remains offline," AHRQ said.

Fees Envisioned
 

Schoelles said ECRI plans to "charge subscription fees to support the staff required to do this work, building our Website, and paying copyright fees."

"As a nonprofit, we cannot support the work entirely on our own, but we will do our best to keep subscription fees reasonable," she said.

ECRI is building the Website now and developing the content, with an aim to launch the site in early autumn.

"We plan to offer institutional and individual subscriptions, although working out the details for the latter may take a little longer," she said.