The complex world of compassionate use drugs and who gets access to them

Jenn McNary's face lights up when she talks about all four of her kids, although she knows she has given most of her life, her energy, and all of her fight to her two oldest Her eyes harden as she remembers the moment a few years back when she realized there was something worse than knowing both of her children would die; knowing there was something out there that could help them, but that only one of them could have. That something was an experimental drug. The worlds of a young New England mom and the high-stakes multibillion-dollar biotech industry were about to collide in what seemed like anything but a fair fight.