Patient advocates warn that the erosion of federal health care protections since Trump took office threatens to undermine Americans' financial security.
This article was published on Friday, July 25, 2025 in KFF Health News.
President Donald Trump rode to reelection last fall on voter concerns about prices. But as his administration pares back federal rules and programs designed to protect patients from the high cost of health care, Trump risks pushing more Americans into debt, further straining family budgets already stressed by medical bills.
Millions of people are expected to lose health insurance in the coming years as a result of the tax cut legislation Trump signed this month, leaving them with fewer protections from large bills if they get sick or suffer an accident.
At the same time, significant increases in health plan premiums on state insurance marketplaces next year will likely push more Americans to either drop coverage or switch to higher-deductible plans that will require them to pay more out-of-pocket before their insurance kicks in.
Smaller changes to federal rules are poised to bump up patients' bills, as well. New federal guidelines for covid-19 vaccines, for example, will allow health insurers to stop covering the shots for millions, so if patients want the protection, some may have to pay out-of-pocket.
The new tax cut legislation will also raise the cost of certain doctor visits, requiring copays of up to $35 for some Medicaid enrollees.
And for those who do end up in debt, there will be fewer protections. This month, the Trump administration secured permission from a federal court to roll back regulations that would have removed medical debt from consumer credit reports.
That puts Americans who cannot pay their medical bills at risk of lower credit scores, hindering their ability to get a loan or forcing them to pay higher interest rates.
"For tens of millions of Americans, balancing the budget is like walking a tightrope," said Chi Chi Wu, a staff attorney at the National Consumer Law Center. "The Trump administration is just throwing them off."
White House spokesperson Kush Desai did not respond to questions about how the administration's health care policies will affect Americans' medical bills.
The president and his Republican congressional allies have brushed off the health care cuts, including hundreds of billions of dollars in Medicaid retrenchment in the mammoth tax law. "You won't even notice it," Trump said at the White House after the bill signing July 4. "Just waste, fraud, and abuse."
But consumer and patient advocates around the country warn that the erosion of federal health care protections since Trump took office in January threatens to significantly undermine Americans' financial security.
"These changes will hit our communities hard," said Arika Sánchez, who oversees health care policy at the nonprofit New Mexico Center on Law and Poverty.
Sánchez predicted many more people the center works with will end up with medical debt. "When families get stuck with medical debt, it hurts their credit scores, makes it harder to get a car, a home, or even a job," she said. "Medical debt wrecks people's lives."
For Americans with serious illnesses such as cancer, weakened federal protections from medical debt pose yet one more risk, said Elizabeth Darnall, senior director of federal advocacy at the American Cancer Society's Cancer Action Network. "People will not seek out the treatment they need," she said.
About 6 in 10 adults — Democrats and Republicans — say they are worried about being able to afford health care, according to one recent survey, outpacing concerns about the cost of food or housing. And medical debt remains a widespread problem: As many as 100 million adults in the U.S. are burdened by some kind of health care debt.
Despite this, key tools that have helped prevent even more Americans from sinking into debt are now on the chopping block.
Medicaid and other government health insurance programs, in particular, have proved to be a powerful economic backstop for low-income patients and their families, said Kyle Caswell, an economist at the Urban Institute, a think tank in Washington, D.C.
Caswell and other researchers found, for example, that Medicaid expansion made possible by the 2010 Affordable Care Act led to measurable declines in medical debt and improvements in consumers' credit scores in states that implemented the expansion.
"We've seen that these programs have a meaningful impact on people's financial well-being," Caswell said.
Trump's tax law — which will slash more than $1 trillion in federal health spending over the next decade, mostly through Medicaid cuts — is expected to leave 10 million more people without health coverage by 2034, according to the latest estimates from the nonpartisan Congressional Budget Office. The tax cuts, which primarily benefit wealthy Americans, will add $3.4 trillion to U.S. deficits over a decade, the office calculated.
The number of uninsured could spike further if Trump and his congressional allies don't renew additional federal subsidies for low- and moderate-income Americans who buy health coverage on state insurance marketplaces.
This aid — enacted under former President Joe Biden — lowers insurance premiums and reduces medical bills enrollees face when they go to the doctor or the hospital. But unless congressional Republicans act, those subsidies will expire later this year, leaving many with bigger bills.
Federal debt regulations developed by the Consumer Financial Protection Bureau under the Biden administration would have protected these people and others if they couldn't pay their medical bills.
The agency issued rules in January that would have removed medical debts from consumer credit reports. That would have helped an estimated 15 million people.
But the Trump administration chose not to defend the new regulations when they were challenged in court by debt collectors and the credit bureaus, who argued the federal agency had exceeded its authority in issuing the rules. A federal judge in Texas appointed by Trump ruled that the regulation should be scrapped.
More states are passing laws to protect information generated by a person's brain and nervous system as technology improves the ability to unlock the sensitive details of a person's health, mental states, emotions, and cognitive functioning.
Colorado, California, and Montana are among the states that have recently required safeguarding brain data collected by devices outside of medical settings. That includes headphones, earbuds, and other wearable consumer products that aim to improve sleep, focus, and aging by measuring electrical activity and sending the data to an app on users' phones.
A report by the Neurorights Foundation, an advocacy group that aims to protect people from the misuse of neurotechnology, found that 29 of 30 companies with neurotechnology products that can be purchased online have access to brain data and "provide no meaningful limitations to this access." Almost all of them can share data with third parties.
In June, the American Medical Association called for greater regulation of neural data. In April, several Democratic members of the U.S. Senate Committee on Commerce, Science, and Transportation asked the Federal Trade Commission to investigate whether companies are exploiting consumers' brain data. Juliana Gruenwald Henderson, a deputy director of the FTC's Office of Public Affairs, said the agency had received the letter but had no additional comment.
Although current devices gather relatively basic information like sleep states, advocates for brain data protection caution that future technologies, including artificial intelligence, could extract more personal and sensitive information about people's medical conditions or innermost thoughts.
"If you collect the data today, what can you read from it five years from now because the technology is advancing so quickly?" said Democratic state Sen. Cathy Kipp, who sponsored Colorado's 2024 neural data protection bill when she was in the state House of Representatives.
As both excitement and trepidation about AI build, at least 28 states and the U.S. Virgin Islands have enacted some type of AI regulation separate from the privacy bills protecting neural data. President Donald Trump's "One Big Beautiful Bill" included a 10-year halt on states passing laws to regulate AI, but the Senate stripped that provision out of the budget reconciliation bill before voting to approve it on July 1.
The spirit of laws in Colorado, California, and Montana is to protect the neural data itself, not to regulate any algorithm or AI that might use it, said Sean Pauzauskie, medical director for the Neurorights Foundation.
But neurotechnology and AI go hand in hand, Pauzauskie said. "A lot of what these devices promise is based on pattern recognition. AI is really driving the usability and significance of the patterns in the brain data."
Cristin Welle, a professor of neurosurgery at the University of Colorado School of Medicine, said that AI's ability to identify patterns is a game changer in her field. "But contribution of a person's neural data on an AI training set should be voluntary. It should be an opt-in, not a given."
Chile in 2021 became the first country to adopt a constitutional amendment for neurorights, which prioritize human rights in the development of neurotechnology and collection of neural data, and UNESCO has said that neurotechnology and artificial intelligence could together pose a threat to human identity and autonomy.
Neurotechnology can sound like science fiction. Researchers used a cap with 128 electrodes and an AI model to decode the brain's electric signals from thoughts into speech. And two years ago, a study described how neuroscientists reconstructed the Pink Floyd song "Another Brick in the Wall" by analyzing the brain signals of 29 epilepsy patients who listened to the song with electrodes implanted in their brains.
The aim is to use neurotechnology to help those with paralysis or speech disabilities, as well as treat or diagnose traumatic brain injuries and brain disorders such as Alzheimer's or Parkinson's. Elon Musk's Neuralink and Synchron, funded by Bill Gates and Jeff Bezos, are among the companies with clinical trials underway for devices implanted in the brain.
Pauzauskie, a hospital neurologist, started worrying four years ago about the blurring of the line between clinical and consumer use of neural data. He noted that the devices used by his epilepsy patients were also available for purchase online, but without protections afforded by the Health Insurance Portability and Accountability Act in medical settings.
Pauzauskie approached Kipp two years ago at a constituent meetup in his hometown of Fort Collins to propose a law to protect brain data in Colorado. "The first words out of her mouth that I'll never forget were, ‘Who would be against people owning their own brain data?'" he said.
Brain data protection is one of the rare issues that unite lawmakers across the political aisle. The bills in California, Montana, and Colorado passed unanimously or nearly unanimously. Montana's law will go into effect in October.
Neural data protection laws in Colorado and California amend each state's general consumer privacy act, while Montana's law adds to its existing genetic information privacy act. Colorado and Montana require initial express consent to collect or use neural data and separate consent or the ability to opt out before disclosing that data to a third party. A business must provide a way for consumers to delete their data when operating in all three states.
"I want a very hard line in the sand that says, you own this completely," said Montana state Republican Sen. Daniel Zolnikov, who sponsored his state's neural data bill and other privacy laws. "You have to give consent. You have the right to have it deleted. You have complete rights over this information."
For Zolnikov, Montana's bill is a blueprint for a national neural data protection law, and Pauzauskie said support of regulatory efforts by groups like the AMA pave the way for further federal and state efforts.
Welle agreed that federal regulations are needed in addition to these new state laws. "I absolutely hope that we can come up with something on a national level that can enshrine people's neural rights into law, because I think this is going to be more important than we can even imagine at this time."
"Almost 5 million able-bodied Medicaid recipients 'simply choose not to work' and 'spend six hours a day socializing and watching television.'" — Scott Jennings on CNN NewsNight with Abby Phillip.
This article was published on Tuesday, July 22, 2025 in KFF Health News.
Republicans defended the GOP megabill's Medicaid changes as targeting a group of people they believe shouldn't qualify: people who can work but instead choose to stay home and chill.
Several Republican politicians and pundits, including CNN senior political commentator Scott Jennings, pegged that group's size at about 5 million people.
"There are like almost 5 million able-bodied people on Medicaid who simply choose not to work," Jennings said July 1 on "CNN NewsNight with Abby Phillip." "They spend six hours a day socializing and watching television. And if you can't get off grandma's couch and work, I don't want to pay for your welfare."
Centers for Medicare & Medicaid Services Administrator Mehmet Oz picked up on some of these points during a July 14 appearance on Fox News. "When the program was created 60 years ago, it never dawned on anyone that you would take able-bodied individuals who could work and put them on Medicaid. Today the average able-bodied person on Medicaid who doesn't work, they watch 6.1 hours of television or just hang out," Oz said.
Medicaid is a federal-state health insurance program that covers medical care for lower-income people.
Jennings cited two pieces of data: an estimate of how many fewer people would have coverage because of the work requirement and an analysis of how nonworking Medicaid recipients spend their time. But he made assumptions that the data doesn't support.
Jennings Misrepresents CBO Estimate
The 4.8 million figure stems from a June 24 Congressional Budget Office analysis of a preliminary House version of the massive tax and spending package. The office, Congress' nonpartisan research arm, projected that provisions of the bill would cause 7.8 million fewer people to have health coverage by 2034. They would include 4.8 million people previously eligible for Medicaid described as "able-bodied" adults 19 to 64 years old who have no dependents and who "do not meet the community engagement requirement" of doing "work-related activities" at least 80 hours a month.
Apart from working, doing community service and attending school also fulfill the community engagement requirement.
Jennings paired that statistic with a separate analysis of how nondisabled adult Medicaid recipients without dependent children spend their time.
But the CBO estimate was a projection — it doesn't represent the current number of nondisabled Medicaid recipients, nor does it say 4.8 million people in this group "choose not to work." The figure represented how many fewer people would have coverage because of the bill's community engagement requirement.
"The challenge with Jennings' comments — and they've been echoed elsewhere by elected Republicans — is that CBO never said that 4.8 million people were out of compliance with the proposed work requirements; they said that 4.8 million people would lose coverage because of the work requirements," said Adrianna McIntyre, an assistant professor of health policy and politics at the Harvard T.H. Chan School of Public Health.
Among the Medicaid expansion population, the law requires most adults without dependent children and parents of children older than 13 to work or participate in other qualifying activities 80 hours every month. States will need to verify that applicants met the work requirement for one to three months before they applied. States will also be required to verify that existing enrollees met the work requirement for at least a month between eligibility determinations, which will be required at least twice a year.
Research into Medicaid work requirements imposed at the state level has shown that people found it difficult to fulfill them and submit documentation, contributing to coverage losses.
In Arkansas, which added a work requirement to Medicaid in 2018, a study based on nearly 6,000 respondents found that about 95% of the target population were already working or qualified for an exemption, but a third of them did not hear about the work requirements. As a result, nearly 17,000 Medicaid recipients subject to work requirements lost coverage.
KFF found that adults ages 50 to 64 are more at risk of losing Medicaid coverage because of the new work requirements. More than 1 in 10 in that age group said they had retired, and among them, 28% reported being disabled, said KFF, a health information nonprofit that includes KFF Health News.
Benjamin Sommers, a health care economics professor at the Harvard Chan school, said many of the 4.8 million "able-bodied" people in the CBO estimate "will actually be engaged in the activities they are supposed to be doing, and lose coverage because they are not able to navigate the reporting requirements with the state and lose coverage from red tape."
When Recipients Don't Work, It's Rarely From Lack of Interest
There is no universal definition for "able-bodied"; disability can be assessed in different ways. But other studies offer much smaller estimates than 4.8 million Medicaid recipients without dependents who can work but choose not to.
Millions of working-age, nondisabled adults joined the Medicaid ranks in states that expanded eligibility under the Affordable Care Act. There were about 34 million working-age nondisabled Medicaid enrollees in 2024, according to the CBO, 15 million of whom enrolled through the ACA.
A KFF analysis found a smaller figure of 26 million Medicaid-covered adults, ages 19 to 64, who don't receive Supplemental Security Income, Social Security Disability Insurance, or Medicare benefits.
Among this group, KFF estimated, 64% were working either full time or part time. The reasons the rest were not working included caregiving (12%); illness or disability (10%); retirement, inability to find work, or other reason (8%); and school attendance (7%).
Few people cited lack of interest in working as the reason for their unemployment. An Urban Institute study found 2% of Medicaid expansion enrollees without dependents who neither worked nor attended school — or 300,000 people out of a projected 15 million subject to work requirements — cited a lack of interest in working as the reason they were unemployed.
This was consistent with the Brookings Institution's June 5 analysis that found that, of 4.3 million adult enrollees who worked fewer than 80 hours a month and did not have any activity limitations or illnesses, about 300,000 reported that they "did not work because they did not want to."
Mostly Women, Mostly With a High School Degree or Less
When Republicanshave described nondisabled adult Medicaid recipients, they have often portrayed them as men in their 30s "playing video games" in their parents' basement or who "smoke weed all day." Research paints a different picture.
Jane Tavares and Marc Cohen, of the University of Massachusetts-Boston Gerontology Department, researched Medicaid recipients who are not disabled or working, have no dependent children under 18, and are not in school. They cited 2023 census data from the American Community Survey.
They found:
The average age of this population is 41, and 26% are older than 50.
Almost 80% are female.
Most, 80%, have a high school education or less.
Their median individual income is $0, and their median household income is $44,800.
About 56% worked in the past five years, and 23% worked in the prior year. About 30% are looking or available for work.
"They are not healthy young adults just hanging out," the authors, along with health law experts Sara Rosenbaum and Alison Barkoff, wrote April 30.
"It's clear based on their prior work history and family size/income that they are exceptionally poor and have likely left the workforce to care for adult children or older adults," Tavares told PolitiFact. "Even if these individuals could work, they would have very few job opportunities and it would come at the cost of the people they are providing care for."
AEI Study Not Definitively Linked to CBO Estimate
On the social platform X, Jennings posted the CBO letter and a May 29 analysis by the American Enterprise Institute, a conservative think tank, about "how nondisabled Medicaid recipients without children spend their time." PolitiFact contacted CNN to reach Jennings but did not receive a reply.
The author of that study, American Enterprise Institute senior fellow Kevin Corinth, analyzed survey data and found that Medicaid recipients who do not report working spend on average 6.1 hours a day "on all socializing, relaxing and leisure activities (including television and video games)."
But it's uncertain whether the people in the survey population he analyzed overlap with the people included in the CBO analysis, said Jennifer Tolbert, deputy director of KFF's Program on Medicaid and the Uninsured.
Corinth told PolitiFact "it is difficult to say" how the population he analyzed differs from the CBO's. Tavares, Cohen, Rosenbaum, and Barkoff said Corinth's dataset defined disability narrowly, leading to a "serious underestimation of disability" among the population of Medicaid recipients he looked into. It focused on Medicaid recipients who receive Supplemental Security Income or have a health condition that prevents them from working. The researchers said this approach is too narrow because the SSI program accounts for only those "most deeply impoverished adults with severe disabilities."
The group gave a hypothetical example of a 54-year-old woman with a serious heart condition who can work only a few hours a week. She may not be considered disabled under the SSI program, but she may be limited in the work she can do and may need time to rest.
"Using her ‘leisure time' to justify a work requirement grossly misrepresents her reality," the group wrote.
Corinth's analysis also shows that nonworking Medicaid recipients spend less time socializing, relaxing, or engaged in leisure activities than nonworking people who aren't covered by Medicaid. Nonworking Medicaid recipients also spend more time looking for work and doing housework and errands, it found.
Our Ruling
Jennings said almost 5 million nondisabled Medicaid recipients "simply choose not to work" and "spend six hours a day socializing and watching television."
The 5 million figure stems from a CBO projection that 4.8 million people would go without coverage by 2034 as a result of not fulfilling the community engagement requirements. It is not descriptive of current enrollees and does not specify that these people choose not to work.
Jennings cited an American Enterprise Institute analysis on how nondisabled Medicaid recipients with no dependents spend their time, but it is uncertain if the population in that analysis overlaps with that in the CBO estimate.
Current snapshots of the population Jennings described produce a smaller number. A survey by the Urban Institute found that 2% of Medicaid expansion enrollees without dependents who were neither working nor attending school — about 300,000 people — cited a lack of interest in working. Other research has found reasons this group doesn't work include caregiving, illness or disability, retirement, and inability to find work.
Studies of nonworking Medicaid recipients have found the majority are women and have a high school education or less. Their average age is 41, and more than half have a work history in the past five years.
We rate Jennings' statement False.
Our Sources
Email interview, Jane Tavares, University of Massachusetts-Boston adjunct instructor in gerontology, July 2, 2025
Email interview, Marc Cohen, University of Massachusetts-Boston professor of gerontology, July 2, 2025
Email interview, Sara Rosenbaum, George Washington University Milken Institute School of Public Health professor emerita of health law and policy, July 2, 2025
Email interview, Alison Barkoff, George Washington University Milken Institute School of Public Health associate professor of health law and policy, July 2, 2025
Email interview, Edwin Park, Georgetown University McCourt School of Public Policy Center for Children and Families research professor, July 2, 2025
Email interview, Benjamin Sommers, Harvard T.H. Chan School of Public Health professor of health care economics, July 2, 2025
Phone interview, Jennifer Tolbert, deputy director of KFF's Program on Medicaid and the Uninsured, July 2, 2025
Email interview, Adrianna McIntyre, Harvard T.H. Chan School of Public Health assistant professor of health policy and politics, July 2, 2025
Phone interview, Michael Karpman, Urban Institute Health Policy Division principal research associate, July 3, 2025
Email exchange, Congressional Budget Office spokesperson, July 2, 2025
Email interview, Kevin Corinth, American Enterprise Institute senior fellow, July 3, 2025
Alexander tried signing up for Pathways, the state's limited Medicaid expansion, multiple times and got denied each time, he said, even though he met the qualifying terms because he's a full-time student.
Georgia is one of 10 states that haven't expanded Medicaid health coverage to a broader pool of low-income adults. Instead, it offers coverage to those who can prove they're working or completing 80 hours a month of other qualifying activities, like going to school or volunteering. And it is the only state currently doing so.
"Why is this marketing out here?" said the 20-year-old, who lives in Conyers, east of Atlanta. "It's truly not accessible."
Each denial used the same boilerplate language, Alexander said, and his calls to caseworkers were not returned. State offices couldn't connect him with caseworkers assigned to him from the same state agency. And when he requested contact information for a supervisor to appeal his denial, he said, the number rang to a fax machine.
"It's impenetrable," Alexander said. "I've literally tried everything, and there's no way."
Millions of Americans trying to access Medicaid benefits could soon find themselves navigating similar byzantine state systems and work rules. Legislation signed into law by President Donald Trump on July 4 allocates $200 million to help states that expanded Medicaid create systems by the end of next year to verify whether some enrollees are meeting the requirements.
Conservative lawmakers have long argued that public benefits should go only to those actively working to get off of government assistance. But the nation's only Medicaid work requirement program shows they can be costly for states to run, frustrating for enrollees to navigate, and disruptive to other public benefit systems. Georgia's budget for marketing is nearly as much as it has spent on health benefits. Meanwhile, most enrollees under age 65 are already working or have a barrier that prevents them from doing so.
What Georgia shows is "just how costly setting up these administrative systems of red tape can be," said Joan Alker, executive director of Georgetown University's Center for Children and Families.
Over the past two years, KFF Health News has documented the issues riddling Georgia's Pathways program, launched in July 2023. More than 100,000 Georgians have applied to the program through March. Just over 8,000 were enrolled at the end of June, though about 300,000 would be eligible if the state fully expanded Medicaid under the terms of the Affordable Care Act.
The program has cost more than $100 million, with only $26 million spent on health benefits and more than $20 million allocated to marketing contracts, according to a KFF Health News analysis of state reports.
"That was truly a pretty shocking waste of taxpayer dollars," Alker said.
The Government Accountability Office is investigating the costs of the program after a group of Democratic senators — including both members of the Georgia delegation — asked the government watchdog to look into the program. Findings are expected this fall.
A state report to the federal government from March said Georgia couldn't effectively determine if applicants meet the qualifying activities criteria. The report also said the state hadn't suspended anyone for failing to work, a key philosophical pillar of the program. Meanwhile, as of March, more than 5,000 people were waiting to have their eligibility verified for Pathways.
The Pathways program has strained Georgia's eligibility system for other public benefits, such as food stamps and cash assistance.
In April, the state applied to the federal government to renew Pathways. In its application, officials scaled back key elements, such as the requirement that enrollees document work every month. Critics of the program also say the red tape doesn't help enrollees find jobs.
"Georgia's experience shows that administrative complexity is the primary outcome, not job readiness," said Natalie Crawford, executive director of Georgia First, which advocates for fiscal responsibility and access to affordable health care.
Despite the struggles, Garrison Douglas, a spokesperson for Georgia's Republican governor, Brian Kemp, defended the program. "Georgia Pathways is doing what it was designed to do: provide free healthcare coverage to low-income, able-bodied Georgians who are willing to engage in one of our many qualifying activities," he said in an emailed statement.
New federal requirements in the tax and spending legislation mean that the 40 states (plus Washington, D.C.) that expanded Medicaid will need to prepare technology to process the documentation some Medicaid recipients will now have to regularly file.
The federal law includes exemptions for people with disabilities, in addiction treatment, or caring for kids under 14, among others.
The Trump administration said other states won't face a bumpy rollout like Georgia's.
"We are fully confident that technology already exists that could enable all parties involved to implement work and community engagement requirements," said Mehmet Oz, head of the Centers for Medicare & Medicaid Services, in an emailed statement.
In a written public comment on Georgia's application to extend the program, Yvonne Taylor of Austell detailed the difficulties she faced trying to enroll.
She said she tried to sign up several times but that her application was not accepted. "Not once, not twice, but 3 times. With no response from customer service," she wrote in February. "So now I am without coverage."
Victoria Helmly of Marietta wrote in a January comment that she and her family members take care of their dad, but the state law doesn't exempt caregivers of older adults.
"Georgia should recognize their sacrifices by supporting them with health insurance," she wrote. "Let's simplify this system and in the end, save money and lives."
A last-minute scramble to add a $50 billion rural health program to President Donald Trump's massive tax and spending law has left hospital and clinic leaders nationwide hopeful but perplexed.
The Rural Health Transformation Program calls for federal regulators to hand states $10 billion a year for five years starting in fiscal year 2026.
But the "devil's in the details in terms of implementing," said Sarah Hohman, director of government affairs at the National Association of Rural Health Clinics.
"An investment of this amount and this style into rural — hopefully it goes to rural — is the type of investment that we and other advocates have been working on for a long time," said Hohman, whose organization represents 5,600 rural health clinics.
People who live in the nation's rural expanses have more chronic diseases, die younger, and make less money. Those compounding factors have financially pummeled rural health infrastructure, triggering hospital closures and widespread discontinuation of critical health services like obstetrics and mental health care.
Nearly 1 in 4 people in rural America use Medicaid, the state and federal program for low-income and disabled people. So, as Senate Republicans heatedly debated Medicaid spending reductions, lawmakers added the $50 billion program to quell opposition. But health advocates and researchers doubt it will be enough to offset expected cuts in federal funding.
Senate Majority Leader John Thune, a Republican from South Dakota, which has one of the largest percentages of rural residents in the nation, led the push to pass the budget bill. His website touts support for strengthening access to care in rural areas. But his office declined to respond on the record to questions about the rural health program included in the bill.
Sen. Susan Collins, a Republican from Maine who introduced an initial amendment to add the rural program, also did not respond to a request for comment. On July 15, Sen. Josh Hawley, a Republican from Missouri, introduced a bill to reverse future cuts to Medicaid and add to the rural program.
Michael Cannon, director of health policy studies at the Cato Institute, a libertarian think tank headquartered in Washington, D.C., said the money was set aside because of politics and not necessarily for rural patients.
"As long as it's a government slush fund where politics decides where the money goes, then there's going to be a mismatch between where those funds go and what it is consumers need," Cannon said.
The nonpartisan Congressional Budget Office estimates federal Medicaid spending will be reduced by about $1 trillion over the next decade.
"These dollar amounts translate to actual people," said Fredric Blavin, a senior fellow and researcher at the Urban Institute, a Washington D.C.-based think tank that focuses on social and economic research.
Most states expanded their Medicaid programs to cover more low-income adults under the Affordable Care Act. That has lowered medical debt, improved health, and even reduced death rates, Blavin said.
By 2034, about 11.8 million people are expected to lose their health insurance from this bill, said Alice Burns, an associate director for KFF's Program on Medicaid and the Uninsured. And she said the Medicaid rollback may have an outsize impact on rural areas.
In rural areas, federal Medicaid spending is expected to decline by $155 billion over 10 years, according to an analysis by KFF, a health information nonprofit that includes KFF Health News.
If the goal of the rural program was to transform rural health care, as its name suggests, it will fall short, Burns said. The $50 billion rural program distributed over five years won't offset the losses expected over a decade of Medicaid reductions, she said.
In Kansas, Holton Community Hospital Chief Executive Carrie Lutz said she doesn't "feel that the sky is falling right now."
Lutz, whose 14-bed hospital is on the northern plains of the state, said she is bracing for the potential loss of Medicaid-covered patients and limits to provider taxes, which nearly all states use to get extra federal Medicaid money.
The reduction in provider taxes has been delayed until fiscal year 2028, Lutz said, but she still wants her state's leaders to apply for a portion of the rural program funding, which is expected to be distributed sooner.
"Every little penny helps when you've got very negative margins to begin with," Lutz said.
The program's $50 billion will be spread over five years and may not be limited to bolstering rural areas or their hospitals. Half of the money will be distributed "equally" among states that apply to and win approval from the Centers for Medicare & Medicaid Services. The law's current language "raises the possibility" that a small state like Vermont could receive the same amount as a large state like Texas, Burns said.
States are required to submit a "detailed rural health transformation plan" by the end of this year, according to the law.
The law says states should use the funds to pursue goals including improving access to hospitals and other providers, improving health outcomes, enhancing economic opportunity for health care workers, and prioritizing the use of emerging technologies.
Mehmet Oz, a Trump appointee leading Medicare and Medicaid, will determine how to distribute the other half, or $25 billion, using a formula based on states' rural population and need. The law says the money is to be used for such things as increasing use of robotics, upgrading cybersecurity, and helping rural communities "to right size their health care delivery systems."
Spokespeople for CMS did not respond to a list of questions.
Kyle Zebley, senior vice president of public policy at the American Telemedicine Association, said there is "a pretty significant degree of discretion" for the White House and the Medicare and Medicaid administrator in approving state plans.
"We will urge states to include robust telehealth and virtual care options within their proposals going up to the federal government," Zebley said.
Alexa McKinley Abel, government affairs and policy director for the National Rural Health Association, said that while the law calls for states to create and submit plans, it's unclear what state agencies will perform the task, McKinley Abel said.
"There are a lot of gaps around application and implementation," she said, noting that an earlier version of the bill called for state plans to be developed in consultation with federally funded state offices of rural health.
But those offices are proposed to be eliminated in Trump's federal budget, which will face congressional approval in the fall. McKinley Abel said her organization supports state offices of rural health helping develop the plans and working with states to disburse the money, "since they intimately know the rural health community."
Hohman, with the rural health clinic association, said she is not sure money from the transformation program will even reach her members. About 27% of the patients treated at rural health clinics are enrolled in Medicaid, she said.
"There's just some confusion about who actually gets this money at the end of the day," Hohman said. "What is it actually going to be used for?"
KFF Health News senior correspondent Phil Galewitz contributed to this report.
Last year in Massachusetts, after finding lumps in her breast, Jessica Chen went to Lowell General Hospital-Saints Campus, part of Tufts Medicine, for a mammogram and sonogram. Before the screenings, she asked the hospital for the estimated patient responsibility for the bill using her insurance, Tufts Health Plan. Her portion, she was told, would be $359 — and she paid it. She was more than a little surprised weeks later to receive a bill asking her to pay an additional $1,677.51. "I was already trying to stomach $359, and this was many times higher," Chen, a physician assistant, told me.
The No Surprises Act, which took effect in 2022, was rightly heralded as a landmark piece of legislation, which "protects people covered under group and individual health plans from receiving surprise medical bills," according to the Centers for Medicare & Medicaid Services. And yet bills that take patients like Chen by surprise just keep coming.
With the help of her software-wise boyfriend, she found the complicated "machine-readable" master price list that hospitals are required to post online and looked up the negotiated rate between Lowell General and her insurer. It was $302.56 — less than she had paid out-of-pocket.
CMS is charged with enforcing the law, so Chen sent a complaint about the surprising bill to the agency. She received a terse email in return: "We have reviewed your complaint and have determined that the rights and protections of the No Surprises Act do not apply."
When I asked the health system to explain how such a surprising off-estimate bill could be generated, Tufts Medicine spokesperson Jeremy Lechan responded by email: "Healthcare billing is complex and includes various factors and data points, so actual charges for care provided may differ from initial estimates. We understand the frustration these discrepancies can cause."
Here's the problem: While the No Surprises Act has been a phenomenal success in taking on some unfair practices in the wild West of medical billing, it was hardly a panacea.
In fact, the measure protected patients primarily from only one particularly egregious type of surprise bill that had become increasingly common before the law's enactment: When patients unknowingly got out-of-network care at an in-network facility, or when they had no choice but to get out-of-network care in an emergency. In either case, before President Donald Trump signed the law late in his first term, patients could be hit with tens or hundreds of thousands of dollars in out-of-network bills that their insurance wouldn't pay.
The No Surprises Act also provided some protection from above-estimate bills, but at the moment, the protection is only for uninsured and self-pay patients, so it wouldn't apply in Chen's case since she was using health insurance.
But patients who do qualify generally are entitled to an up-front, good-faith estimate for treatment they schedule at least three business days in advance or if they request one. Patients can dispute a bill if it is more than $400 over the estimate. (The No Surprises Act also required what amounted to a good-faith estimate of out-of-pocket costs for patients with insurance, but that provision has not been implemented, since, nearly five years later, the government still has not issued rules about exactly what form it should take.)
So, surprising medical bills — bills that the patient could not have anticipated and never consented to — are still stunning countless Americans.
Jessica Robbins, who works in product development in Chicago, was certainly surprised when, out of the blue, she was recently billed $3,300 by Endeavor Health for a breast MRI she had received two years earlier, with prior authorization from her then-insurer, Blue Cross and Blue Shield of Illinois. In trying to resolve the problem, she found herself caught in a Kafkaesque circle involving dozens of calls and emails. The clinic where she had the procedure no longer existed, having been bought by Endeavor. And she no longer had Blue Cross.
"We are actively working with the patient and their insurer to resolve this matter," Endeavor spokesperson Allie Burke said in an emailed response to my questions.
Mary Ann Bonita of Fresno, California, was starting school this year to become a nursing assistant when, on a Friday, she received a positive skin test for tuberculosis. Her school's administration said she couldn't return to class until she had a negative chest X-ray. When her doctor from Kaiser Permanente didn't answer requests to order the test for several days, Bonita went to an emergency room and paid $595 up front for the X-ray, which showed no TB. So she and her husband were surprised to receive another bill, for $1,039, a month later, "with no explanation of what it was for," said Joel Pickford, Bonita's husband.
In the cases above, each patient questioned an expensive, unexpected medical charge that came as a shock — only to find that the No Surprises Act didn't apply.
"There are many billing problems out there that are surprising but are not technically surprise bills," Zack Cooper, an associate professor of economics at Yale University, told me. The No Surprises Act fixed a specific kind of charge, he said, "and that's great. But, of course, we need to address others."
Cooper's research has found that before the No Surprises Act was passed, more than 25% of emergency room visits yielded a surprise out-of-network bill.
CMS' official No Surprises Help Desk has received tens of thousands of complaints, which it investigates, said Catherine Howden, a CMS spokesperson. "While some billing practices, such as delayed bills, are not currently regulated" by the No Surprises Act, Howden said, complaint trends nonetheless help "inform potential areas for future improvements." And they are needed.
Michelle Rodio, a teacher in Lakewood, Ohio, had a lingering cough weeks after a bout of pneumonia that required treatment with a course of antibiotics. She went to Cleveland Clinic's Lakewood Family Health Center for an examination. Her X-ray was fine. As was her nasal swab — except for the stunning $2,700 bill it generated.
"I said, ‘This is a surprise bill!'" Rodio recalled telling the provider's finance office. The agent said it was not.
"So I said, ‘Next time I'll be sure to ask the doctor for an estimate when I get a nose swab.'"
"The doctors wouldn't know that," the agent replied, as Rodio recalled — and indeed physicians generally have no idea how much the tests they order will cost. And in any case, Rodio was not legally entitled to a binding estimate, since the part of the No Surprises Act that grants patients with insurance that right has not been implemented yet.
So she was stuck with a bill of $471 (the patient responsibility portion of the $2,700 charge) that she couldn't have consented to (or rejected) in advance. It was surprising — shocking to her, even — but not a "surprise bill," according to the current law. But shouldn't it be?
Most of the 24 million people in Affordable Care Act health plans face a potential one-two punch next year — double-digit premium increases along with a sharp drop in the federal subsidies that most consumers depend on to buy the coverage, also known as Obamacare.
Insurers want higher premiums to cover the usual culprits — rising medical and labor costs and usage — but are tacking on extra percentage point increases in their 2026 rate proposals to cover effects of policy changes advanced by the Trump administration and the Republican-controlled Congress. One key factor built into their filings with state insurance departments: uncertainty over whether Congress allows more generous, COVID-era ACA tax subsidies to expire at the end of December.
"The out-of-pocket change for individuals will be immense, and many won't actually be able to make ends meet and pay premiums, so they will go uninsured," said JoAnn Volk, co-director of the Center on Health Insurance Reforms at Georgetown University.
Especially if the higher subsidies expire, insurance premiums will be among the first financial pains felt by healthcare consumers after policy priorities put forward by President Donald Trump and the GOP. Many other changes — such as additional paperwork requirements and spending cuts to Medicaid — won't occur for at least another year. But spiking ACA premiums, as the nation heads into key midterm elections, invites political pushback. Some on Capitol Hill are exploring ways to temper the subsidy reductions.
"I am hearing on both sides — more from Republicans, but from both the House and Senate" — that they are looking for levers they can pull, said Pennsylvania-based insurance broker Joshua Brooker, who follows legislative actions as part of his job and sits on several insurance advisory groups.
In initial filings, insurers nationally are seeking a median rate increase — meaning half of the proposed increases are lower and half higher — of 15%, according to an analysis for the Peterson-KFF Health System Tracker covering 19 states and the District of Columbia. KFF is a national health information nonprofit that includes KFF Health News.
That's up sharply from the last few years. For the 2025 plan year, for example, KFF found that the median proposed increase was 7%.
Health insurers "are doing everything in their power to shield consumers from the rising costs of care and the uncertainty in the market driven by recent policy changes," wrote Chris Bond, a spokesperson for AHIP, the industry's lobbying group. The emailed response also called on lawmakers "to take action to extend the healthcare tax credits to prevent skyrocketing cost increases for millions of Americans in 2026."
Neither the White House nor HHS responded to requests for comment.
These are initial numbers and insurance commissioners in some states may alter requests before approval.
Still, "it's the biggest increase we've seen in over five years," said analysis co-author Cynthia Cox, a KFF vice president and director of its Program on the ACA.
Premiums will vary based on where consumers live, the type of plan they choose, and their insurer.
For example, Maryland insurers have requested increases ranging from 8.1% to 18.7% for the upcoming plan year, according to an analysis of a smaller set of insurers by Georgetown University researchers. A much larger swing is seen in New York, where one carrier is asking for less than a 1% increase, while another wants 66%. Maryland rate filings indicated the average statewide increase would shrink to 7.9% from 17.1% — if the ACA's enhanced tax credits are extended.
Most insurers are asking for 10% to 20% increases, the KFF report says, with several factors driving those increases. For instance, insurers say underlying medical costs — including the use of expensive obesity drugs — will add about 8% to premiums for next year. And most insurers are also adding 4% above what they would have charged had the enhanced tax credits been renewed.
But rising premiums are just part of the picture.
A bigger potential change for consumers' pocketbooks hinges on whether Congress decides to extend more generous tax credits first put in place during President Joe Biden's term as part of the American Rescue Plan Act in 2021, then extended through the Inflation Reduction Act in 2022.
Those laws raised the subsidy amounts people could receive based on their household income and local premium costs and removed a cap that had barred higher earners from even partial subsidy assistance. Higher earners could still qualify for some subsidy but first had to chip in 8.5% of their household income toward the premiums.
Across the board, but especially among lower-income policyholders, bigger subsidies helped fuel record enrollment in ACA plans.
But they're also costly.
A permanent extension could cost $335 billion over the next decade, according to the Congressional Budget Office.
Such an extension was left out of the policy law Trump signed on July 4 that he called the "One Big Beautiful Bill." Without action, the extra subsidies will expire at the end of this year, after which the tax credits will revert to less generous pre-pandemic levels.
That means two things: Most enrollees will be on the hook to pay a larger share of their premiums as assistance from federal tax credits declines. Secondly, people whose household income exceeds four times the federal poverty level — $84,600 for a couple or $128,600 for a family of four this year — won't get any subsidies at all.
If the subsidies expire, policy experts estimate, the average amount people pay for coverage could rise by an average of more than 75%. In some states, ACA premiums could double.
"There will be sticker shock," said Josh Schultz, strategic engagement manager at Softheon, a New York consulting firm that provides enrollment, billing, and other services to about 200 health insurers, many of which are bracing for enrollment losses.
And enrollment could fall sharply. The Wakely Consulting Group estimates that the combination of expiring tax credits, the Trump law's new paperwork, and other requirements will result in ACA enrollment dropping by as much as 57%.
According to KFF, insurers added premium increases of around 4% just to cover the expiration of the enhanced tax credits, which they fear will lead to lower enrollment. That would further raise costs, insurers say, because people who are less healthy are more likely to grit their teeth and reenroll, leaving insurers with a smaller, but sicker, pool of members.
Less common in the filings submitted so far, but noticeable, are increases pegged to Trump administration tariffs, Cox said.
"What they are assuming is tariffs will drive drug costs up significantly, with some saying that can have around a 3-percentage-point increase" in premiums as a result, she said.
Consumers will learn their new premium prices only late in the fall, or when open enrollment for the ACA begins on Nov. 1 and they can start shopping around.
Congress could still act, and discussions are ongoing, said insurance broker Brooker.
Some lawmakers, he said, are consulting with the CBO about the fiscal and coverage effects of various scenarios that don't extend the subsidies as they currently exist but may offer a middle ground. One possibility involves allowing subsidies for families earning as much as five or six times the poverty level, he said.
But any such effort will draw pushback.
Some conservative think tanks, such as the Paragon Health Institute, say the more generous subsides led people to fudge their incomes to qualify and led to other types of fraud, such as brokers signing people up for ACA plans without authorization.
But others note that many consumers — Democratic and Republican — have come to rely on the additional assistance. Not extending it could be risky politically. In 2024, 56% of ACA enrollees lived in Republican congressional districts, and 76% were in states won by Trump.
Allowing the enhanced subsidies to expire could also reshape the market.
Brooker said some people may drop coverage. Others will shift to plans with lower premiums but higher deductibles. One provision of Trump's new tax law allows people enrolled in either "bronze" or "catastrophic"-level ACA plans, which are usually the cheapest, to qualify for health savings accounts, which allow people to set aside money, tax-free, to cover healthcare costs.
"Naturally, if rates do start going up the way we anticipate, there will be a migration to lower-cost options," Brooker said.
Rehab hospitals that help people recover from major surgeries and injuries have become a highly lucrative slice of the health care business. But federal data and inspection reports show that some run by the dominant company, Encompass Health Corp., and other for-profit corporations have had rare but serious incidents of patient harm and perform below average on two key safety measures tracked by Medicare.
Yet even when inspections reveal grave cases of injury, federal health officials do not inform consumers or impose fines the way they do for nursing homes. And Medicare doesn't provide easy-to-understand five-star ratings as it does for general hospitals.
In the most serious problems documented by regulators, rehab hospital errors involved patient deaths.
In Encompass Health's hospital in Huntington, West Virginia, Elizabeth VanBibber, 73, was fatally poisoned by a carbon monoxide leak during construction at the facility.
At its hospital in Jackson, Tennessee, a patient, 68, was found dead overnight, lying on the floor in a "pool of blood" after an alarm that was supposed to alert nurses that he had gotten out of bed had been turned off.
In its hospital in Sioux Falls, South Dakota, a nurse gave Frederick Roufs, 73, the wrong drug, one of 26 medication errors the hospital made over six months. He died two days later at another hospital.
"I can still see Fred laying in the bed as they shut each little machine off," said his widow, Susan Roufs. "They clicked four of them, and then the love of my life was gone."
Encompass, which owns 168 hospitals and admitted 248,000 patients last year, has led the transformation of this niche industry. In 2023, stand-alone for-profit medical rehabilitation hospitals overtook nonprofits as the places where the majority of annual patient admissions occur, a KFF Health News and New York Times analysis found. A third of all admissions were to Encompass hospitals. Such facilities are required to provide three hours of therapy a day, five days a week.
Across the nation, there are now nearly 400 stand-alone rehab hospitals, the bulk of which are for-profit. These hospitals collectively generate profits of 10%, more than general hospitals, which earn about 6%, and far more than skilled nursing homes, which make less than 0.5%, according to the most recent data from the Medicare Payment Advisory Commission, an independent congressional agency.
At the same time, the number of small, specialized units within acute care hospitals — where most rehab used to be provided — has dwindled. There are now around 800 of those, and most are nonprofits.
In its latest annual report, Encompass, which is publicly traded, reported an 11% net profit in 2024, earning $597 million last year on revenues of $5.4 billion.
Federal data on the performance of about 1,100 of the rehab facilities show Encompass tends to be better at helping most patients return home and remain there. In a two-year period ending in September 2023, Medicare rated 233 rehab facilities as performing better than the national rate for this major metric, called "discharge to community." Most rehabs with better community discharge rates are for-profit, and Encompass owns 79 of them.
But data from Medicare also reveals Encompass owns many of the rehabs with worse rates of potentially preventable, unplanned readmissions to general hospitals. Medicare evaluates how often patients are rehospitalized for conditions that might have been averted with proper care, including infections, bedsores, dehydration, and kidney failures.
Encompass accounts for about 1 in 7 rehab facilities nationally, but owned 34 of the 41 inpatient rehab facilities that Medicare rated as having statistically significantly worse rates of potentially preventable readmissions for discharged patients. (Overall, rates of readmission after discharge ranged from 7% to 12%, with a median of 9%.)
And it owned 28 of the 87 rehab facilities — 65 of which were for-profit — that had worse rates of potentially preventable readmissions to general hospitals during patient stays. (The median for these kinds of readmissions was 5%, and rates for individual rehabs ranged from 3% to 9%.)
Patrick Darby, the executive vice president and general counsel of Encompass, strongly defended the company's record in written responses to questions. He dismissed Medicare's readmissions ratings of "better," "worse," and "no different than the national rate" as "a crude scoring measure" and said "performance is so similar across the board." He called the violations found during health inspections "rare occurrences" that "do not support an inference of widespread quality concerns."
"The simplest and most accurate reason for EHC's success is that our hospitals provide superior care to patients," he said, referring to Encompass by its corporate initials.
Chih-Ying Li, an associate professor of occupational therapy at the University of Texas Medical Branch at Galveston School of Health Professions, said in an interview that a research study she conducted found the profit status of a rehab facility was the only characteristic associated with higher unplanned readmissions.
"The finding is pretty robust," she said. "It's not like huge, huge differences, but there are differences."
Alarming Mistakes
VanBibber was admitted to Encompass' Huntington hospital in 2021 for therapy to strengthen her lungs. At the time, the hospital was undergoing a $3 million expansion, and state regulators had warned the company that areas of the hospital occupied by patients had to be isolated from the construction "using airtight barriers," according to a health inspection report.
In her room, which was about 66 feet from the construction zone, she began having trouble breathing, the report said. When she told the staff, they ignored her and shut her door, according to a lawsuit brought by her estate. Staff members eventually noticed that she was "lethargic and gasping for air," and called 911.
When the emergency medical squad arrived, the carbon monoxide detectors they wore sounded. By that time, VanBibber's blood oxygen levels were dangerously low, the inspection report said. She died three days later from respiratory failure and carbon monoxide poisoning, according to the inspection report and the lawsuit. A plumber had been using a gas-powered saw in the construction area, but there were no carbon monoxide detectors in the hallways, the report said.
In court papers, Encompass and its construction contractors denied negligence for VanBibber's death. The case is pending.
Inspectors determined Encompass failed to maintain a safe environment for all patients during construction and didn't properly evaluate other patients for signs of poisoning, the report said.
Since 2021, the federal Centers for Medicare and Medicaid Services, or CMS, which oversees health inspections, has found that 10 Encompass hospitals, including the one that cared for VanBibber, had immediate jeopardy violations, federal records show. Such violations — like the ones that Medicare also found in connection with the deaths of Roufs and the patient who fell after leaving his bed — mean a hospital's failure to comply with federal rules has put patients at risk for serious injury, serious harm, serious impairment, or death.
Darby, the general counsel for Encompass, said the company regretted any clinical problems and had promptly addressed all such findings to the satisfaction of inspectors. He said Encompass that has an "excellent compliance record," including superior results from its accreditation agency, and that its overall number of health citations was tiny given how many hospitals Encompass owns and how many patients it treats.
Six other corporate-operated for-profit hospitals were also cited, while none of the 31 stand-alone nonprofit rehab hospitals received such violations from 2021 to 2024. (Inspection reports for general hospitals do not systematically specify in which part of the building a violation occurred, so rehab unit violations cannot be identified.)
An alert called a bed alarm was at the root of immediate jeopardies at Encompass hospitals in Morgantown, West Virginia, and Jackson, Tennessee. The devices are pressure- and motion-sensitive and emit a sound and display a light to alert staff members that someone at a high risk of falls has left his or her bed.
In its Morgantown hospital, a nurse technician discovered a patient face down on the floor with a large gash on her head after a defective alarm did not go off, an inspection report said. After she died, the nurse told inspectors: "We are having a lot of problems with the bed alarms."
Medicare is not authorized by law to fine rehab hospitals for safety rule violations, even ones involving deaths uncovered during inspections, as it has done with nearly 8,000 nursing homes during the last three years, imposing average fines of about $28,000.
The only option is to entirely cut off a rehab hospital's reimbursement for all services by Medicare and Medicaid, which cover most patients. That step would most likely put it out of business and is almost never used because of its draconian consequences.
"Termination is typically a last resort after working with the provider to come back into compliance," Catherine Howden, a CMS spokesperson, said in an email.
As a result, because there's no graduated penalty, even the most serious — and rare — immediate jeopardy violations effectively carry no punishments so long as the hospital puts steps in place to avert future problems.
"Only having a nuclear weapon has really hurt patient safety," said Michael Millenson, a medical quality advocate.
One immediate jeopardy incident did result in a punishment, but only because the hospital was in California, which allows its health department to issue penalties. Encompass' Bakersfield hospital paid a $75,000 fine last year for failing to control the blood sugar of a patient who died after her heart stopped.
Rapid Growth and a Troubled History
Encompass has accelerated its expansion in recent years and now operates in 38 states and Puerto Rico. It plans to open 17 more hospitals in Arizona, Connecticut, Florida, Georgia, Maine, Pennsylvania, South Carolina, Texas, and Utah by the end of 2027, according to its latest report.
It frequently moves into new markets by persuading local nonprofit hospitals to shutter their rehab units in exchange for an equity stake in a newly built Encompass hospital, company executives have told investors.
The president of Encompass, Mark Tarr, calls it a "win-win proposition": The local hospitals can use their emptied space for a more lucrative line of service and Encompass gets a "jump start" into a new market, with partner hospitals often referring patients.
Tarr, who was paid $9.3 million in compensation last year, told investors that Encompass requires that the existing hospitals sign a noncompete deal. Sixty-seven Encompass hospitals are joint ventures, mostly with nonprofit hospitals as investors, according to the company's June financial filing, the most recent available.
Darby said the company's profits allow it to build hospitals in areas that lack intensive inpatient rehabilitation and improve existing hospitals. "High-quality patient care is not only consistent with shareholder return, but quality and shareholder return are in fact critical to one another," he said.
The Securities and Exchange Commission charged that the company, then known as HealthSouth, overstated earnings by $2.7 billion to meet Wall Street analyst quarterly expectations, leading to the ouster of its founder and directors. In 2004, the company agreed to pay the government $325 million to settle Medicare fraud allegations without admitting wrongdoing. Darby credited the company's new leaders for obtaining a $2.9 billion judgment on behalf of shareholders against the company's founder.
The company changed its name to Encompass in 2018 after acquiring Encompass Home Health and Hospice. In 2019, the Justice Department announced the company had agreed to pay $48 million to settle whistleblower lawsuit claims that it misdiagnosed patients to get higher Medicare reimbursements, and admitted patients who were too sick to benefit from therapy. The company denied any wrongdoing, blaming independent physicians who worked at its hospitals. Darby said Encompass settled the case only to "avoid more years of expense and disruption." He said the Justice Department never filed a lawsuit despite years of investigation.
Medication Harms
Rehab hospital inspection reports are not posted on Care Compare, Medicare's online search tool for consumers. KFF Health News had to sue CMS under the Freedom of Information Act to obtain all its inspection reports for rehab hospitals. In contrast, Care Compare publishes all nursing home inspection reports and assigns each facility a star rating for its adherence to health and safety rules.
So people now choosing a rehab hospital would not know that at the Encompass hospital in Sioux Falls, South Dakota, in 2021, a nurse accidentally gave Roufs a blood pressure drug called hydralazine instead of hydroxyzine, his prescribed anti-anxiety medication, according to an inspection report. Roufs went into cardiac arrest. This type of error, called a "look-alike/sound-alike," is one hospitals and staff members are supposed to be especially alert to.
Months before, an internal safety committee had identified a trend of medication errors, including when a nurse accidentally gave a patient 10 times the prescribed amount of insulin, sending him to the hospital, the inspection report said. The nurse had misread four units as 40. Since Roufs's death, inspectors have faulted the hospital six times for various lapses, most recently in April 2024 for improper wound care.
An Encompass hospital in Texarkana, Texas, misused antipsychotic medications to pacify patients, resulting in an immediate jeopardy finding from CMS, the report said. And the company's hospital in Erie, Pennsylvania, was issued an immediate jeopardy violation for not keeping track of medication orders in 2023, when a patient had a cardiac arrest after not receiving all of his drugs, according to the inspection report.
The federal government's overall quality oversight efforts are limited. Medicare docks payment to rehab facilities for patients readmitted to a general hospital during shorter-than-average rehab stays, but unlike at general hospitals, there are no financial penalties when recently discharged rehab patients are hospitalized for critical health issues.
The Biden administration announced last year it intended to develop a rating scale of 1 to 5 stars for rehab facilities. The industry's trade association, the American Medical Rehabilitation Providers Association, requested a delay in the creation of star ratings until the current quality measures were refined. The Trump administration has not determined whether it will continue the effort to rate rehab facilities, according to a CMS spokesperson.
Deadly Bedsores
Paul Webb Jr., a 74-year-old lawyer, died a few months after developing a bedsore in an Encompass Health hospital, a lawsuit alleges. Photos of him with family members sit on a desk in his home in Mayville, New York. Encompass denied liability.(Dustin Franz for KFF Health News)
The family of Paul Webb Jr., 74, claimed in a lawsuit that the Encompass hospital in Erie left Webb unattended in a wheelchair for hours at a time, putting pressure on his tailbone, in 2021. His medical records, provided to reporters by the family, list a sitting tolerance of one hour.
Webb — who had been originally hospitalized after a brain bleed, a type of stroke — developed skin damage known as a pressure sore, or bedsore, on his bottom, the lawsuit said. The suit said the sore worsened after he was sent to a nursing home, which the family is also suing, then home, and he died later that year. In his final weeks, Webb was unable to stand, sit, or move much because of the injury, the lawsuit said.
In court papers, Encompass and the nursing home denied negligence, as Encompass has in some other pending and closed lawsuits that accused it of failing to prevent pressure sores because nurses and aides failed to regularly reposition patients, or notice and treat emerging sores. Darby said Webb's death occurred three months after his Encompass stay and was not related to his care at Encompass. He said no hospital with long-term patients could prevent every new or worsening pressure sore, but that Encompass' rates were similar to the 1% national average.
One of Webb's sons, Darel Webb, recalled a warning given to the family as they left an appointment their father had with wound specialists: A doctor brought up Christopher Reeve, the actor who played Superman in movies in the 1970s and 1980s.
"He goes, ‘Remember, Superman was paralyzed from falling off the horse, but he died from a bedsore,'" he said.
Jordan Rau has been writing about hospital safety since 2008. Irena Hwang is a New York Times data reporter who uses computational tools to uncover hidden stories and illuminate the news.
METHODOLOGY
To examine the medical rehabilitation hospital industry, we obtained and analyzed a database of inspection reports of freestanding rehabilitation hospitals from the federal Centers for Medicare & Medicaid Services, or CMS. We also obtained inspection reports from several states through public records requests.
We analyzed inpatient rehabilitation facility characteristics and patient volume data contained in hospital data files from the Rand Corp., a nonprofit research organization. This dataset compiles cost reports all hospitals submit each year to CMS. For each facility for the years 2012 to 2023, we categorized annual discharges by facility type (freestanding rehabilitation hospital or unit within an acute care hospital); facility ownership status (for-profit, nonprofit, or government); and which hospitals were owned by Encompass Health under its current or prior name, HealthSouth.
Financial information about Encompass Health was obtained from the company's Securities and Exchange Commission disclosure filings.
We examined the readmission rates for all inpatient rehabilitation facilities that CMS publishes in its quality data. CMS evaluates the frequency with which Medicare patients were readmitted for potentially preventable reasons to an acute care hospital during their rehab stay. Separately, CMS also evaluates the frequency of potentially preventable readmissions to an acute care hospital within 30 days of discharge from rehab. We also examined the rate of successful return to home or community. Figures for all three metrics were available for about 1,100 of the roughly 1,200 rehab facilities in the CMS data. The most recent readmission data covered Medicare discharges from October 2021 through September 2023.
We examined nursing home penalties from the last three years from CMS' data on nursing homes.
Doctors, hospitals, and health insurers for weeks issued dire warnings to Republican lawmakers that millions of people would lose health coverage and hospitals would close if they cut Medicaid funding to help pay for President Donald Trump's big tax and spending bill.
But Republicans ignored those pleas, made even deeper cuts, and sent the legislation on July 3 to the White House, where Trump signed it the next day.
The law's passage marked a rare political loss for some of the health industry's biggest players. When unified, doctors, hospitals, and insurers have stood among the most powerful lobbying forces in Washington and have a long track record of blocking or forcing changes to legislation that could hurt them financially.
But health industry lobbyists are catching their breath and assessing the damage after Trump's massive bill raced through Congress in less than two months with only Republican votes.
Several lobbyists offered various reasons for being unable to stave off big cuts to Medicaid, a $900 billion state-federal health insurance program that covers an estimated 72 million low-income and disabled people nationally and accounts for 19% of all spending on hospital care, about $283 billion a year, according to the latest data. But nearly all agreed that GOP lawmakers were more worried about angering Trump than facing backlash from local hospitals and constituents back home.
"Members were more scared of Trump issuing a primary challenge than disappointing local voters who may find their hospital has to close or their insurance premium may go up," said Bob Kocher, a partner with venture capital firm Venrock who served in the Obama administration, referring to election primaries leading into the midterms.
Consider what happened to Sen. Thom Tillis (R-N.C.). After he took to the Senate floor to announce his opposition to the bill because of its cuts to Medicaid, Trump threatened to support a challenger to run against Tillis next year. Shortly thereafter, Tillis announced his retirement from politics.
But other factors were at work.
The health industry's warnings to lawmakers may have been dismissed because hospitals, health centers, and other health care provider groups are seen by Republicans as strong backers of the Affordable Care Act, the law known as Obamacare that's considered Democrats' biggest domestic achievement in decades.
The ACA expanded government health insurance coverage to millions of people previously not eligible. And no Republicans voted for it.
"Hospitals' support of the ACA has frustrated Republicans, and as a result there is less a reservoir of goodwill to hospitals than in the past," Kocher said.
Ceci Connolly, chief executive of the Alliance of Community Health Plans, said her lobbying team spent extra time on Capitol Hill with lawmakers and their staffers, raising concerns about how the legislation would imperil health care coverage.
"There was almost an overriding sense on the part of Republicans in Congress to deliver a major victory for President Trump," she said. Her group represents health plans that provide coverage in about 40 states. "That superseded some of their concerns, reluctance, and hesitation."
Connolly said she repeatedly heard from GOP lawmakers that the focus was on delivering on Trump's campaign promise to extend his 2017 tax cuts.
She said the concerns of some moderate members helped lead to one concession: a $50 billion fund to help rural hospitals and other health providers.
The money, she said, may have made it easier for some lawmakers to support a bill that, in total, cuts more than $1 trillion from Medicaid over a decade.
Another twist: Many new lawmakers were clearly still learning about Medicaid, she said.
Republicans also seemed eager to reduce the scope of Medicaid and Affordable Care Act marketplace coverage after enrollment in both programs soared to record levels during the pandemic and the Biden administration, she said. Trump's law requires states to verify eligibility for Medicaid at least every six months and ends auto-enrollment into marketplace plans — steps health policy experts says will reverse some of those gains.
Charles "Chip" Kahn, a longtime health lobbyist and CEO of the Federation of American Hospitals, which represents for-profit hospitals, said the industry's message was heard on Capitol Hill. But because the bill dealt with so many other issues, including tax cuts, border security, and energy, lawmakers had to decide whether potential health coverage losses were more important.
It was very different than in 2017, when Republicans tried to repeal Obamacare but failed. Trump's 2025 measure, Kahn said, isn't a health reform bill or a health bill.
It "left us with an outcome that was unfortunate."
There were some successes, however, Kahn said.
Industry lobbying did prevent the federal government from reducing its share of spending for states that expanded Medicaid under the ACA. Hospitals and other Medicaid advocates also persuaded Congress not to cap the program's open-ended federal funding to states. Both measures would have tallied billions more in additional Medicaid funding cuts.
The new law doesn't change eligibility rules for Medicaid or change its benefits. But it does stipulate that states require most Medicaid enrollees who gained coverage via the ACA's expansion to document that they work or volunteer 80 hours a month, a provision the Congressional Budget Office predicts will lead to about 5 million people losing coverage by 2034.
The law also limits states' use of a decades-old system of taxing health providers to leverage extra federal Medicaid funding. This was another loss for the hospital industry, which has supported the practice because it led to higher payments from Medicaid.
Medicaid generally pays lower fees for care than private insurance and Medicare, the program for people 65 and older as well as those with disabilities. But due to provider taxes, some hospitals are paid more under Medicaid than Medicare, according to the Commonwealth Fund, a health research nonprofit.
Kahn credits the Paragon Health Institute, a conservative think tank, and its CEO Brian Blase for pushing the argument that provider taxes amounted to legalized "money laundering." Blase advised Trump on health policy in his first term.
One hospital executive who asked for his name to be withheld to avoid professional retribution said the message — that some facilities had used this play to increase their profits — resonated with GOP lawmakers. "They thought some hospitals were doing fine financially and did not want to reward them," he said.
Still, Kahn, who is retiring at the end of the year, said he was pleased the Senate delayed implementation of the provider tax cuts until 2028. That will give the health industry a chance to revise the law, he speculated, possibly after the 2026 midterm election changes the balance of power in Congress.
In rural northeastern Louisiana, Todd Eppler, CEO of Desoto Regional Medical Center, had hoped Congress would pass the initial House version of the bill, which didn't include cuts to provider-tax funding. But he said any impact on his hospital in Mansfield, located in House Speaker Mike Johnson's district, will be offset by the $50 billion rural health fund.
"I am happy where we ended up," Eppler said. "I think they listened to rural hospitals."
Hospitals have argued for decades that any cuts in federal funding to Medicaid or Medicare would harm patients and lead to service reductions. Because hospitals are usually one of the largest employers in a congressional district, the industry often also warns of potential job losses. Such arguments typically give lawmakers pause.
But this time around, that message had little traction.
One health industry lobbyist, who asked not to be identified to speak candidly without risking professional repercussions, said there was a sense on Capitol Hill that hospitals could withstand the funding cuts.
But there's also a belief that trade groups including the American Hospital Association, the largest hospital industry lobbying organization, could have been more effective. "There is lot of concern that AHA statements were too soft, too little, and too late," he said.
AHA helped lead a coalition of hospital organizations that spent millions of dollars on television advertising against the GOP bill. Its president and CEO, Rick Pollack, said in a statement before the House voted on the legislation that the cuts to Medicaid would be a "devastating blow to the health and well-being of our nation's most vulnerable citizens and communities."
Pollack said in a statement to KFF Health News that the appeal of tax cuts drove Republican lawmakers to pass the law.
"Hospitals and health systems have tirelessly advocated to protect coverage and access for millions of people," he said. "We will continue to raise these critical issues to mitigate the effects of these proposals."
The nation's largest trade group for doctors, the American Medical Association, also opposed the funding cuts to Medicaid and other federal health programs. Its president, Bobby Mukkamala, said in a July 1 statement that the changes "will shift costs to the states and specifically to physicians and hospitals to provide uncompensated care at a time when rural hospitals and physician practices are struggling to keep their doors open."
But the AMA was also focused on securing higher Medicare fees for doctors. The law ultimately included a one-time 2.5% Medicare pay bump for doctors in 2026. This wasn't a victory because it left out the House version's permanent payment fix that would have tied doctor pay to the medical inflation rate. Mukkamala noted the temporary lift but described it as falling "far short of what is needed to preserve access to care for America's seniors."
Joe Dunn, chief policy officer at the National Association of Community Health Centers, said his organization worked relentlessly this year to prevent deeper Medicaid cuts that would financially hurt nonprofit clinics. Health center administrators visited Washington in February, made thousands of phone calls, and sent emails to members of Congress.
One payoff was that the health centers were exempted from the law's requirement that providers charge some Medicaid enrollees up to $35 copayments for services.
But at the end of the day, Dunn said, many GOP House and Senate members simply wanted to finish the bill. "They went in a direction that satisfied the president's timelines and goals," he said.
Chief Washington correspondent Julie Rovner contributed to this report.
As a postpartum doula, Dawn Oliver does her best work in the middle of the night.
During a typical shift, she shows up at her clients' home at 10 p.m. She answers questions they may have about basic infant care and keeps an eye out for signs of postpartum depression.
After bedtime, she may feed the baby a bottle or wake the mother to breastfeed. She soothes the infant back to sleep. Sometimes, she prepares meals for the family in a Crock-Pot or empties the dishwasher.
She leaves the following morning and returns, often nightly, for two or three weeks in a row.
"I'm certified to do all of it," said Oliver, of Hardeeville, South Carolina, who runs Compassionate Care Doula Services. It takes a village to raise a child, as the adage goes, but "the village is not what it used to be," Oliver said.
Doulas are trained to offer critical support for families — before delivery, during childbirth, and in those daunting early days when parents are desperate for sleep and infants still wake up around the clock. While doulas typically don't hold a medical or nursing degree, research shows they can improve health outcomes and reduce racial health disparities.
Yet their services remain out of reach for many families. Oliver charges $45 an hour overnight, and health insurance plans often don't cover her fees. That's partly why business "ebbs and flows," Oliver said. Sometimes, she's fully booked for months. Other times, she goes several weeks without a client.
That may soon change.
Two bipartisan bills, introduced in separate chambers of the South Carolina General Assembly, would require both Medicaid, which pays for more than half of all births in the state, and private insurers to cover the cost of doula services for patients who choose to use one.
South Carolina isn't an outlier. Even as states brace for significant reductions in federal Medicaid funding over the next decade, legislatures across the country continue to pass laws that grant doula access to Medicaid beneficiaries. Some state laws already require private health insurers to do the same. Since the start of 2025, Vermont lawmakers, alongside Republican-controlled legislatures in Arkansas, Utah, Louisiana, and Montana, have passed laws to facilitate Medicaid coverage of doula services.
All told, more than 30 states are reimbursing doulas through Medicaid or are implementing laws to do so.
Notably, these coverage requirements align with one of the goals of Project 2025, whose "Mandate for Leadership" report, published in 2023 by the conservative Heritage Foundation, offered a blueprint for President Donald Trump's second term. The document calls for increasing access to doulas "for all women whether they are giving birth in a traditional hospital, through midwifery, or at home," citing concerns about maternal mortality and postpartum depression, which may be "worsened by poor birth experiences." The report also recommends that federal money not be used to train doctors, nurses, or doulas to perform abortions.
The Heritage Foundation did not respond to an interview request.
Meanwhile, the idea that doulas can benefit babies, parents, and state Medicaid budgets by reducing costly cesarean sections and preterm birth complications is supported by a growing body of research and is gaining traction among conservatives.
A study published last year in the American Journal of Public Health found that women enrolled in Medicaid who used a doula faced a 47% lower risk of delivering by C-section and a 29% lower risk of preterm birth. They were also 46% more likely to attend a postpartum checkup.
"Why wouldn't you want somebody to avail themselves of that type of care?" said Republican state Rep. Tommy Pope, who co-sponsored the doula reimbursement bill in the South Carolina House of Representatives. "I don't see any reason we shouldn't be doing that."
Pope said his daughter-in-law gave birth with the assistance of a doula. "It opened my eyes to the positive aspects," he said.
Amy Chen, a senior attorney with the National Health Law Program, which tracks doula reimbursement legislation around the country as part of its Doula Medicaid Project, said lawmakers tend to support these efforts when they have a personal connection to the issue.
"It's something that a lot of people resonate with," Chen said, "even if they, themselves, have never been pregnant."
Conservative lawmakers who endorse state-level abortion bans, she said, often vote in favor of measures that support pregnancy, motherhood, and infant health, all of which these doula reimbursement bills are intended to do.
Some Republicans feel as if "they have to come out in favor of that," Chen said.
Health care research also suggests that Black patients, who suffer significantly higher maternal and infant mortality rates than white patients, may particularly benefit from doula care. In 2022, Black infants in South Carolina were more than twice as likely to die from all causes before their 1st birthday as white infants.
That holds true for women in rural parts of the country where labor and delivery services have either closed or never existed.
That's why Montana lawmakers passed a doula reimbursement bill this year — to narrow health care gaps for rural and Indigenous communities. To that end, in 2023, the state enacted a bill that requires Medicaid to reimburse midwives for home births.
Montana state Sen. Mike Yakawich, a Republican who backed the Democratic-sponsored doula reimbursement bill, said pregnant women should have someone to call outside of a hospital, where health care services can be costly and intimidating.
"What help can we provide for moms who are expecting? My feeling is, it's never enough," Yakawich said.
Britney WolfVoice lives on the Northern Cheyenne Indian Reservation in southeastern Montana, about two hours from the closest birthing hospital. In early July, she was seven months pregnant with her fourth child, a son, and said she planned to have a doula by her side for the second time in the delivery room. During WolfVoice's previous pregnancy, an Indigenous doula named Misty Pipe brought cedar oil and spray into the delivery room, rubbed WolfVoice's back through contractions, and helped ensure WolfVoice's husband was the first person their daughter saw.
"Being in a hospital, I felt heard for the very first time," WolfVoice said. "I just can't explain it any better than I felt at home. She was my safe place."
Pipe said hospitals are still associated with the government forcibly removing children from Native American homes as a consequence of colonization. Her goal is to help give people a voice during their pregnancy and delivery.
Most of her clients can't afford to pay for doula services out-of-pocket, Pipe said, so she doesn't charge anything for her birth services, balancing her role as a doula with her day job at a post office.
"If a mom is vulnerable, she could miss a prenatal appointment or go alone, or I can take time off of work and take her myself," Pipe said. "No mom should have to birth in fear."
The new state law will allow her to get paid for her work as a doula for the first time.
In some states that have enacted such laws, initial participation by doulas was low because Medicaid reimbursement rates weren't high enough. Nationally, doula reimbursement rates are improving, Chen said.
For example, in Minnesota, where in 2013 lawmakers passed one of the first doula reimbursement bills, Medicaid initially paid only $411 per client for their services. Ten years later, the state had raised the reimbursement rate to a maximum of $3,200 a client.
But Chen said it is unclear how federal Medicaid cuts might affect the fate of these state laws.
Some states that haven't passed doula reimbursement bills, including South Carolina, might be hesitant to do so in this environment, she said. "It's just a really uncertain time."