Government documents viewed by KFF Health Newsshow a drop in patients receiving care this year at the National Institutes of Health's renowned research hospital, a 200-bed facility at NIH headquarters in Maryland.
We previously reported a decrease in the number of patients being treated at the NIH Clinical Center from February through April. Since then, we've obtained newer data showing the drop has continued.
As of mid-August, the average daily number of patients treated at the hospital was around 60. There has been a steady drop since February, coinciding with the Trump administration's mass firings of government employees, its broad immigration crackdown, and the gutting of scientific research.
By contrast, last October, about 80 patients a day, on average, were at the hospital, the documents show.
Current and former government workers cite multiple reasons for the decline. An exodus of clinicians, scientists, and other staffers has limited the number of people who can be treated. Researchers are leaving, which means they're not recruiting patients to come to the NIH for trials.
And, the workers say, it's likely that fewer patients who lack legal status in the U.S. are seeking care at the NIH hospital. That's because of the Trump administration's immigration policies and the federal government's tighter rules for visitors from abroad.
In a statement, HHS spokesperson Andrew Nixon said the decline in the number of patients "has been ongoing for years" and the clinical center "remains fully operational and continues to provide world-class clinical research and patient care."
Are you a cancer patient whose care at the National Institutes of Health Clinical Center in Maryland, or another hospital, has been affected by the Trump administration's cuts? Are you a family member or caregiver of a cancer patient who has received care at the NIH? We'd like to hear about your experience. Tell us here.
Critics of affirmative action have launched a long-shot appeal aimed at stopping California from requiring training on unconscious bias in every continuing medical education class.
A July ruling by a three-judge panel of the 9th U.S. Circuit Court of Appeals upheld California's right to mandate that every course doctors take to remain licensed must address how bias contributes to poorer health outcomes for racial and ethnic minorities. The ruling against the nonprofit Do No Harm and Los Angeles ophthalmologist Azadeh Khatibi amounts to a victory for California as it fights the Trump administration and right-leaning advocacy and legal groups' attacks on perceived "wokeness."
In August, the Pacific Legal Foundation, which represents Do No Harm and Khatibi, asked that a panel of 11 appellate judges reconsider what attorney Caleb Trotter characterized as a "very clearly wrong" decision. Trotter, a senior attorney for the Pacific Legal Foundation, expects the court's response in October. If the appeal fails, he said, his firm would likely appeal to the U.S. Supreme Court. At stake, legal scholars say, is the latitude of states to prescribe educational content, including health equity training, for licensed professionals.
"The general recent tenor of the Supreme Court's First Amendment jurisprudence has been very speech protective, so that we would like our odds with, of course, the understanding that any attempt to get the Supreme Court to take your case is a long shot," Trotter said.
Erwin Chemerinsky, dean of the University of California-Berkeley law school, described the chances of the Supreme Court taking the case as "very unlikely" and the appellate ruling as "clearly correct" in affirming the state's authority to impose course requirements.
California began requiring implicit-bias training for physicians in 2022. From 2019 through July 2022, five other states enacted legislation mandating the training. California is the only state that requires it to be included in every course involving direct patient care.
In enacting the law, the legislature found that bias contributed to health care disparities and persisted regardless of other factors influencing care. Black women, for example, are often prescribed less pain medication than white women with the same complaints and are three to four times as likely as white women to die of pregnancy-related causes.
Bias does influence clinical care and contribute to health care disparities, a 2022 report concluded. Implicit-bias training, however, might have no impact and might even worsen care, the report noted.
Do No Harm and Khatibi alleged that California's law violated their First Amendment rights. Khatibi acknowledges that unconscious bias might prejudice how clinicians treat patients. But the Los Angeles ophthalmologist does not believe she should be forced to carve out time to talk about it in a class she might teach on, for example, ocular tumors.
"The government is mandating doctors endorse a specific ideology or priority instead of science," she said. "I believe government should not mandate or compel the speech of doctors."
The three-judge appellate panel disagreed. No one is forcing Khatibi to teach state-accredited continuing education, the panel wrote in its opinion affirming a lower court's decision that the state had the right to mandate the training. The judges found that the curriculum requirement constitutes government speech and, therefore, is not subject to free-speech protections.
The complaint against the California medical board does not dispute the state's authority to require physicians to learn about unconscious prejudices. Instead, it argues the state has no right to demand that all teachers discuss bias in every continuing medical education class. California physicians must take at least 50 hours of continuing education every two years. Private institutions offer the courses, and physicians generally teach them.
Rep. Sydney Kamlager-Dove (D-Calif.), who wrote the bill when she was a member of the state Assembly, defended it. "By connecting every provider to consistent and evolving training, we can help close these gaps and provide more equitable care," she said.
The Medical Board of California declined to comment.
Ashutosh Bhagwat, a UC Davis School of Law distinguished professor, said the state has a right to require implicit-bias training, although he disagrees that the training constitutes government speech. He sees it as private, but not compelled, speech because Khatibi and other instructors need only include a discussion of implicit bias if they want their classes to qualify for state licensing credit.
He likened the requirement to that of an accredited private school having to teach math. "Doesn't matter if you don't want to teach math. Doesn't matter if you don't believe in math," he said. "You have to teach math."
Bhagwat sees Khatibi's case as "very weak." But he said he could not predict anything the Supreme Court, with its six-justice conservative majority, might do.
"If Khatibi wins in the Supreme Court, or at any level, then chaos reigns because now every single requirement in any licensure that says you must teach this to qualify for continuing education is up for grabs," he said.
Trotter fears the opposite outcome. If allowed to stand, the implicit-bias training mandate could be extended to continuing education for 50 trades and professions in California alone, he said. "Then all kinds of governments based on all kinds of views can start requiring private speakers to say all kinds of things that, depending on where you are, are going to be controversial in all different kinds of ways," he said.
While Khatibi's lawsuit and others like it have had little success in the courts, said Joan Williams, a distinguished professor emerita at UC Law-San Francisco, they have chilled the creation of laws deemed "woke" or those favoring diversity, equity, and inclusion, known as DEI.
"There's been this huge attack on DEI, and it's been extraordinarily effective in creating regulatory risk such that people are apprehensive and self-editing because they don't want to put a target on their backs," said Williams, who directs the Equality Action Center.
Still, some supporters of bias training say California could refine its approach. Cristina Gonzalez, an internist and a New York University Grossman School of Medicine professor, designs and evaluates interventions to help recognize, prevent, and repair clinicians' prejudices. She described implicit-bias training as "a science" and California's approach as misguided because it requires all instructors, regardless of their knowledge of implicit bias, to teach the material.
Finger-wagging and blaming in implicit-bias training can lead doctors to become defensive and avoid patients, but done correctly, by experts, it does work, Gonzalez said. "The messaging has to be, ‘You're not a bad person,'" she said.
Republicans insist that President Donald Trump's cuts to Medicaid were aimed at reducing fraud and getting more of its adult beneficiaries into jobs. But the side effects may include less care for sick kids.
Some children's hospitals collectively stand to lose billions of dollars in revenue once Trump's wide-ranging tax and spending law, which Republicans called the "One Big Beautiful Bill," is fully enacted, according to the Children's Hospital Association. Kids account for nearly half of enrollees in Medicaid, the state and federally financed health program for low-income and disabled people, and its related Children's Health Insurance Program.
The law will cut federal Medicaid spending by about $900 billion over a decade.
The reduction "cannot be achieved without directly affecting coverage and care for Arizona's kids, especially the most vulnerable among them," said Robert Meyer, chief executive of Phoenix Children's, a pediatric hospital system. About half of the system's revenue comes from Medicaid.
Trump's law locks into place much of his domestic agenda, including a massive expansion of immigration enforcement and an extension of tax cuts that largely benefit the wealthiest Americans. The cuts to Medicaid are expected to partially offset the cost of the president's priorities, which will add more than $3 trillion to the nation's deficit, according to the Congressional Budget Office. About 7.5 million Americans will lose Medicaid coverage by 2034 as a result, the CBO estimates.
Throughout debates over the measure, Republicans insisted the Medicaid cuts would affect only nondisabled adults enrolled in the program who don't work and immigrants living in the U.S. without legal status. "Our legislation preserves Medicaid, strengthens Medicaid for the people who actually need it and deserve it," House Speaker Mike Johnson said June 1 on NBC News' "Meet the Press." "And we're going to get rid of the fraud, waste, and abuse."
Meyer, though, warned that unless some cuts are reversed, Phoenix Children's would lose about $172 million a year in payments that supplement the health system's regular Medicaid revenue, for treating low-income children covered by the program. Medicaid typically pays lower rates for care than commercial insurance or Medicare, the federal program for people age 65 and older.
The supplemental payments, known as state-directed payments, are financed largely by federal taxpayers through complicated tax arrangements adopted by nearly all states. The payments have helped the Phoenix system open additional pediatric clinics, increase mental health staffing, and screen children for abuse and other trauma, Meyer said.
A provision of Trump's law would cap the amount of directed payments states could make to any hospital, including those for children. But the cap, which doesn't take effect until 2028, will be phased in over a decade — and hospitals are already lobbying to ensure that never happens. Days after voting for Trump's law, Sen. Josh Hawley (R-Mo.) introduced legislation that would eliminate provisions of the measure cutting Medicaid payments to hospitals.
If the law isn't changed, at least 29 states would need to reduce their payments, according to an analysis by KFF, a health information nonprofit that includes KFF Health News.
The extra Medicaid funds, on average, make up more than a third of children's hospitals' total Medicaid revenue and about 14% of their operating revenue overall, according to the Children's Hospital Association.
Richard Park, a director at Fitch Ratings, a credit rating agency, said the Medicaid funding cuts present a "long-term headwind" for children's hospitals. Hospital officials say that if the payments are cut and states don't replace the funding, they could be forced to cut staff and services.
"Services the hospitals provide that require longer admissions or bring in less revenue are going to be in the crosshairs, for sure," Park said.
Children's hospitals are especially vulnerable to changes in Medicaid because they count on the program for about half their revenue — a much higher proportion than general acute-care hospitals do.
Most children's hospitals are in good financial condition, however, because they face little competition — there are seldom more than one or two in a metropolitan area — and strong philanthropic support. And the funding cuts won't affect all the nation's approximately 200 children's hospitals.
In 2023, Phoenix Children's had a $163 million surplus on nearly $1.5 billion in revenue, according to its 2023 IRS tax return.
Under the law, the extra payments in the District of Columbia and 40 states that expanded Medicaid under the Affordable Care Act would be capped at Medicare payment rates. The 10 states that didn't expand would be able to pay up to 110% of Medicare rates.
The Biden administration had allowed states to pay up to their average commercial insurance rates. That's generally about 2.5 times the Medicare rate, according to KFF.
Medicaid's traditionally low fees to health providers can make doctors, dentists, and other specialists reluctant to treat patients in the program.
Brian Blase, president of the conservative Paragon Health Institute and a key architect of Medicaid changes in the new law, said cutting state-directed payments is justified because states should not pay hospitals more to treat Medicaid patients than they do for Medicare patients. Unlike regular Medicaid payments for specific health services, hospitals are not always held accountable for how they spend the extra money, he said.
He said state-directed payments to children's hospitals and other facilities amount to "corporate welfare," often helping financially strong institutions get richer.
Blase said states have little incentive to pay hospitals less because the money from state-directed payments comes mostly from federal taxpayers.
In Norfolk, Virginia, Children's Hospital of The King's Daughters depends on more than $11 million annually in state-directed payments to make up for what it says is a shortfall between Medicaid's low reimbursement rates and the cost of advanced care.
The cuts to Medicaid in Trump's law "will have serious and far-reaching consequences to our services, programs, and patients," spokesperson Alice Warchol told KFF Health News. "Medicaid supplemental funding helps us pay for the highly specialized pediatric medical, surgical, and psychiatric physicians that are needed to care for every child who needs our services."
In fiscal 2023, King's Daughters had a $24 million surplus on $646 million in revenue, according to its federal tax return.
King's Daughters has used the extra Medicaid money to expand treatment for abused and neglected children and mental health services, Warchol said.
How states account for the extra payments made to hospitals varies. For instance, Utah Medicaid Director Jennifer Strohecker said her state does not track how the money gets spent.
Other states, such as Texas, use the money as an incentive for hospitals to improve their performance in treating patients. They track how well the facilities do each year and publish the findings in public reports.
Matthew Cook, president and chief executive of the Children's Hospital Association, said that even with the extra funding, Medicaid doesn't cover the full cost of treatment for its patients.
While some children's hospitals have strong balance sheets, boosted by philanthropy, that is not the case for all, Cook said. And the Medicaid funding cuts come on top of reductions in other federal payments, including for training doctors and research, he said.
At Phoenix Children's, Meyer said, the loss of extra funding would curtail expansions of care for children and growth of the hospital's workforce. The hospital hopes Congress delays or reverses the cuts — but it's not counting on it, he said.
"We see this grace period as a godsend to get ourselves ready to close the funding gap," he said.
It was March 2020, and Robert Gordon was about to kick some 80,000 people off health insurance.
As the Michigan state health director, he had spent the past year, and some $30 million in state tax dollars, trying to avoid that very thing.
Gordon was a Democrat, a veteran of the Obama administration, and he did not want people to lose the Medicaid coverage they had recently gained through the Affordable Care Act.
But Gordon and his boss, Democratic Gov. Gretchen Whitmer, had reluctantly inherited a law passed two years earlier, when Republicans led the state. And that law mandated that Michigan institute a work requirement for Medicaid on Jan. 1, 2020.
Gordon and his team determined that most enrollees were already meeting the law's requirements, either because they were already working or had an exemption. Thousands more reported their status through the newly built phone and online systems.
But even so, estimates suggested 80,000 to 100,000 Michiganders were going to be booted off the rolls within the year.
"That's the population of the city of Flint who were on track to lose their insurance," said Gordon, who led the state health department until 2021. "We're implementing this about as well as this thing can be implemented, and it is still going to be pretty catastrophic."
The new tax-and-spending law signed by President Donald Trump in July mandates a vast expansion of Medicaid work requirements to most states.
These systems will lead to 5.3 million more people being uninsured in 2034, according to an estimate from the Congressional Budget Office.
The law applies to 40 states and Washington, D.C., because they expanded Medicaid in recent years to cover more working-age adults.
About 18 million people will be affected once the work mandate is fully implemented nationally, according to the CBO. Unless their state gets an exemption till 2028, by 2027, these enrollees will need to prove they're working, volunteering, getting job training, or doing other qualifying activities at least 80 hours a month to keep their coverage.
Republicans say this is a commonsense way to weed out "freeloaders." Democrats argue that's just political cover for slashing a program that saved some 27,000 lives starting in 2010, when the Affordable Care Act was signed, through 2022.
The number of people who lose coverage, either temporarily or permanently, could vary widely by state, depending on how each state implements and maintains its reporting system.
Michigan's experience illustrates how challenging it can be to stop large numbers of people from inadvertently losing coverage, even when leaders try their best to prevent that.
"We were very committed to implementing a law that we didn't agree with, in a way that reduced the number of people who lost insurance just because the government screwed something up," Gordon said.
A Year of High-Stakes Work
In 2013, then-Gov. Rick Snyder, a Republican, waged a fierce battle within his own party to expand Michigan's Medicaid program.
To Snyder, it was an opportunity to simultaneously save money and expand access: By slashing the rate of uninsured Michiganders by almost half, the state could reduce the burden of uncompensated care on the health system and boost the economy by improving the physical health of the workforce.
But opponents saw it as an expansion of "Obamacare" that would shift massive new costs onto state and federal taxpayers. A work requirement became a point of compromise and a way for Snyder to mollify some of that opposition.
From a coverage perspective, Michigan's expansion of Medicaid was a success. Low-income adults signed up, ballooning new enrollment beyond what even supporters had initially estimated.
By 2019, there were nearly 700,000 new Medicaid recipients in Michigan, and the state was responsible for an increasing share of their health care costs. (Medicaid is paid for jointly by states and the federal government.)
Snyder signed the bill creating the 80-hour-a-month work requirement in 2018, but it wouldn't go into effect until 2020, after he left office.
That left newly elected Democratic governor Whitmer's administration holding the bag. She tapped Gordon, who'd held senior roles in the federal Office of Management and Budget and Department of Education during the Obama administration, to lead the sprawling state health department.
Gordon was terrified that Michigan would become another Arkansas, which was the first state to implement a work requirement, in 2018. The change led more than 18,000 Arkansas residents to lose their coverage.
People in Arkansas were disenrolled "because computers went down, because forms weren't clear, because they just never heard about it," Gordon said. "Maybe they got sicker, maybe they died because of this decision."
If Michiganders lost coverage at the same rate as Arkansans, as many as 160,000 people would have lost their health insurance within a year, according to one estimate.
Trying To Make Medicaid Work Requirements … Work
In some ways, Michigan was better positioned than other states to implement a work requirement, Gordon said: The unemployment rate was the lowest it had been in two decades and the state was already pretty good at collecting and tracking employment and wage data.
"If the state can figure out on its own, without having to ask you if you're working, that's great, because then you don't have to do anything," Gordon said. "You're just exempted."
Michigan eventually changed its law to allow people more time to report their work activities and to automatically determine their compliance or exemption by cross-checking data from other assistance programs, like food benefits.
To see if recipients were students or had health-related exemptions, Gordon and his team also tried to capture data from community college enrollment and medical insurance claims.
Dozens of staffers reprogrammed the state's outdated benefits enrollment portal, created full-time call centers, set up audit and appeals processes, hired compliance review teams, and trained hundreds of local organizers to provide tech and enrollment assistance.
Forms and letters alerting hundreds of thousands of enrollees to the new policy were redesigned to be attention-grabbing and easier to understand.
The sheer amount of effort and time required meant other public health efforts had to take a back seat, Gordon said. "Your first job is going to suffer, and that is a consequence of work requirements."
Yet at the state health department, "all of the oxygen in the room was dedicated — almost all, I should say — to the work requirement implementation," said Renuka Tipirneni, an internal medicine physician at the University of Michigan who studies Michigan's Medicaid expansion.
Even after all that work, Gordon and his team had no illusions the system they'd spent $30 million creating was flawless.
"There was a real sense that everyone was doing everything they could," he said. But they still worried that "huge numbers of people were going to fall through the cracks. Because that's just what happens with systems like this."
A 'Waste' of $30 Million
By the time the work requirement went into effect on Jan. 1, 2020, the state had been able to determine that the vast majority of the nearly 700,000 Medicaid expansion recipients already met the work requirement or were exempt.
That left about 100,000 people whose status was unknown and who therefore still had to go through the reporting process. By March, around 80,000 of those had failed to report and were on track to lose coverage.
On the one hand, it was a lower rate of coverage loss than Arkansas had. But it was still "an enormous number of people" set to lose coverage, Gordon said.
Before that could happen, a federal judge issued a ruling on March 4, 2020, blocking Michigan's policies from going forward. That same day, Gordon was scheduled to testify before a Republican-led subcommittee about how the rollout was going.
Instead, he found himself explaining to legislators that the state's work requirement was essentially dead in the water, and that "we had, on the demand of the people holding the hearing, spent tens of millions of dollars for no purpose."
Given how brief Michigan's experiment with a Medicaid work requirement was — only about two months of the policy's being in effect, with no one losing coverage in the end — the Mackinac Center's Skorup doesn't see a lot of takeaways about the real-life impacts of work requirements.
"If you have an administration that is not sold on these being necessary at all, then I think they're more likely to drag their feet on implementing this, which is what I think they did," Skorup said, referring to the Whitmer administration.
Skorup is concerned because Medicaid costs keep rising, with 2.6 million Michiganders (1 in 4 residents) now covered by the program or the related Children's Health Insurance Program. Skorup believes Medicaid spending is "crowding out" teacher pay, pensions, and roads in the state budget.
Supporters of Medicaid expansion say the program's growth has benefited Michigan, pointing to research that Medicaid expansion helped boost employment and school enrollment and was a net positive for the state financially.
Court Ruling Comes Days Before Covid Hits
Only days after the court ruling stopped the work requirement in Michigan, officials announced the state's first cases of covid-19. The 80,000 Michiganders who might have lost Medicaid were spared, so their health coverage continued as the pandemic unfolded. Gordon continued as health director until 2021, when he resigned over "differences of opinion" with Whitmer about some pandemic restrictions.
These days, Gordon is experiencing a sense of déjà vu, with new predictions showing as many as 500,000 Michiganders could lose coverage within the first year of federally mandated work requirements, according to state estimates.
"We would have a more honest and more efficient policy if Republicans just kick people off Medicaid," he said.
That would be "incredibly harmful," he said. "But this thing they're doing isn't any less harmful. It's just more wasteful administratively, and more confusing to everyone."
This article is from a partnership that includes Michigan Public, NPR, and KFF Health News.
BOWMAN, N.D. — Retta Jacobi stepped onto a metal platform that lifted her to an entrance on the side of a custom-designed semitrailer. Once inside, she lay down on a platform that technicians slid into an MRI machine. Jacobi hoped the scan would help pinpoint the source of the pain in her shoulders.
The mobile MRI unit visits Southwest Healthcare Services, the hospital in Bowman, North Dakota, each Wednesday. Without it, the community's 1,400 residents would have to drive 40 minutes to get to an MRI machine, an expensive piece of medical equipment the hospital couldn't afford on its own.
Southwest Healthcare Services and 21 other independent, rural North Dakota hospitals are part of the Rough Rider Network, which used its members' combined patient rolls to negotiate better prices for the mobile imaging truck.
'Clinically integrated networks'
Independent rural hospitals are increasingly joining what are called clinically integrated networks, collaborative groups that allow them to avoid selling out to larger health systems while sharing resources to save money and improve patient care. Many are motivated by the chance to combine their patient rolls for value-based care contracts, a growing reimbursement model in which insurers pay providers based on the quality of care they provide and the health outcomes of their patients.
Supporters of the networks are exploring whether funding from the $50 billion Rural Health Transformation Program — part of President Donald Trump's recent tax and spending bill — can be used to help start or expand such organizations.
For independent, rural hospitals, the networks are an alternative to shutting down or reducing services, or to giving up local autonomy and joining a large hospital system.
"Anything that can help our rural hospitals and add services is awesome," said Jacobi, who provides speech therapy to children in the local school district.
Closing, or courting a big buyer
Since 2010, 153 rural hospitals in the U.S. have shuttered completely or stopped offering inpatient services, according to the Sheps Center for Health Services Research at the University of North Carolina. A far larger number, 441, merged with or were acquired by hospital systems between 2011 and 2021. That's according to a report commissioned by the Coalition to Strengthen America's Healthcare, an advocacy group comprising hospitals and health associations.
The Rough Rider Network provides negotiating leverage to its members, which serve about two-thirds of rural North Dakotans, said Dennis Goebel, CEO of the Bowman hospital.
Health care vendors "probably wouldn't be talking to us if we're by ourselves," he said. "They're not looking for the little, tiny crumbs. They want a big contract, and they'll give you better pricing."
Some rural networks share specialists who aren't needed full time at any one hospital, according to the Commonwealth Fund, a nonprofit focused on improving the health care system. Some networks also invest in broadband, housing, and other community development projects that can help people stay healthy and access care.
A business to create new networks
Hospitals can pool staffers for a network-wide employee health insurance plan, said Nathan White, CEO of Cibolo Health, a company that helps launch and manage networks in rural areas. He said they can also enter shared contracts for telehealth, prescription drug programs, and other services.
White said he started Cibolo Health after a leader from an independent, rural North Dakota hospital asked him about collaborating with similar facilities. The Rough Rider Network launched in late 2023 with assistance from the company and $3.5 million from the North Dakota Legislature.
Since then, Cibolo Health has helped start networks in Minnesota, Nebraska, Montana, and Ohio. Once a sixth one opens in September, Cibolo-affiliated networks will represent more than 120 hospitals, with service areas covering 4.7 million people, White said.
The networks, which are nonprofits owned by the hospitals, pay an annual fee to Cibolo Health, a for-profit company, for management services. White said leaders from 10 other states are considering joining this model.
Similar networks have been around for more than 30 years but became more popular after the passage of the 2010 Affordable Care Act, according to a report by the Rand Corp., a research nonprofit.
Rural health care providers are increasingly interested in forming such networks, said Marnell Bradfield, executive director of the Community Care Alliance, a network of hospitals and independent primary care offices that launched in 2015 in rural western Colorado. About once a month, she said, she gets a call from health care leaders exploring similar networks and asking about her experience.
The Rand Corp. wrote in its 2020 paper that it didn't find any academic studies that examined whether these networks do what its supporters claim — save money and improve patient care.
"In theory, quality should improve with the alignment of health care organizations, but there is no evidence," the report said. The paper also said such networks could end up increasing prices, something that can occur with traditional mergers and acquisitions.
Bradfield and White said they have the evidence, at least for their organizations.
Community Care Alliance members have reduced their insurance costs while improving patient outcomes, such as reducing their need for inpatient and emergency care, Bradfield said.
White said data from a pilot program between Caret Health, a care coordination company, and SMP Health-St. Kateri, one of Rough Rider's hospitals, showed the program helped a significant number of patients catch up with preventive care.
MRI technician Helen Cryan gets Retta Jacobi ready for her scan inside a mobile imaging semitrailer at Southwest Healthcare Services in Bowman, North Dakota, with the help of the truck's driver, Kevin Kraft, who also works as a medical assistant.
Reaching out to patients, bringing in business
Gabby Wilkie, finance director at the St. Kateri hospital, in Rolla, N.D., near the Canadian border, said Caret Health staff called and texted patients who were behind on annual physicals, cancer screenings, vaccinations, and other visits. She said staffers explained to patients why this preventive care is important for their health before setting up a three-way call with St. Kateri staff to schedule an appointment.
White said it took an average of 11 outreach attempts before patients came in for any visits.
"To be honest, we didn't have the resources to reach out," Wilkie said.
She said St. Kateri would have spent an estimated $300,000 to do that kind of outreach for 1,000 patients. Meanwhile, she said, the hospital estimates it will earn more than $100,000 when that many patients come in for their preventive care. Cibolo Health and the Rough Rider Network both contribute to the cost of the Caret Health service, which is now rolling out to other network hospitals.
Goebel said joining a network to remain independent is also beneficial for the economy of rural areas, where hospitals are often major employers. He said health systems sometimes cut services and staff at rural hospitals they acquire.
Jacobi is taking medication and doing physical therapy after a doctor examined her MRI results. If that doesn't work, she may need to make a five-hour round trip to Bismarck to get an ultrasound-guided steroid shot. Jacobi was thankful she could get a diagnosis and treatment advice without having to travel far for the MRI.
"Anytime we can maintain more local control, it's a good thing for our small towns," she said.
KFF Health News is a national newsroom that produces in-depth journalism about health issues and is one of the core operating programs at KFF.
After losing 50 pounds on the injectable weight loss medication Zepbound, Kyra Wensley received a surprising letter from her pharmacy benefit manager in April.
Her request for coverage had been denied, the letter said, because she'd had a body mass index of less than 35 when she started Zepbound. The 25-year-old who lives in New York had been taking Zepbound without incident for months, so she was confused: Why was her BMI, which had been around 32 when she started, becoming an issue only now?
Wensley had no interest in quitting an effective drug. "Going right off like that, it's easier said than done," she said.
Her doctor fought to keep her on the GLP-1 agonist, the category that includes weight loss and Type 2 diabetes drugs Ozempic, Wegovy, Mounjaro, and Zepbound. But Wensley ultimately had to switch from Zepbound to Wegovy to meet her plan's requirements. She said she doesn't like Wegovy as much as her old medication, but she now feels lucky to be on any GLP-1.
Lots of research suggests such medications must be used indefinitely to maintain weight loss and related health benefits. But with list prices of roughly $1,000 a month, public and private payers are struggling to keep up with ballooning demand for GLP-1 weight loss drugs and in some cases are eliminating or restricting their coverage as a result.
North Carolina Medicaid plans to end GLP-1 coverage for weight loss on Oct. 1, just over a year after starting the coverage. Pennsylvania is planning to limit Medicaid coverage to beneficiaries at the highest risk of complications from obesity. And despite recent reports of a potential federal pilot program to extend coverage of GLP-1 obesity drugs under Medicaid and Medicare, all state Medicaid programs are likely to be under pressure due to steep spending cuts in the budget reconciliation package recently signed into law by President Donald Trump.
Already, many GLP-1 users quit within a year, studies suggest — often due to side effects, high costs, or insurance issues. Now a growing number of researchers, payers, and providers are exploring deliberate "deprescription," which aims to taper some patients off their medication after they have taken it for a certain amount of time or lost a certain amount of weight.
The U.K.'s National Institute for Health and Care Excellence, which creates guidance for the National Health Service, recommends two-year limits on the use of some weight loss medications, such as Wegovy. And the concept was raised in a recent Institute for Clinical and Economic Review report on affordable access to obesity drugs.
A. Mark Fendrick, who directs the Center for Value-Based Insurance Design at the University of Michigan, has argued that if some people using GLP-1s to lose weight were eventually transitioned off, more people could take advantage of them.
"If you're going to spend $1 billion or $100 billion, you could either spend it on fewer people for a long period of time, or you can spend it on a lot more people for a shorter period of time," he said.
Fendrick's employer, the University of Michigan, indeed does that. Its prescription drug plan caps coverage of GLP-1 drugs at two years if they're used solely for weight loss.
Jamie Bennett, a spokesperson for Wegovy and Ozempic maker Novo Nordisk, declined to comment on the concept of deprescription, noting that its drugs are intended for chronic conditions. Rachel Sorvig, a spokesperson for Zepbound and Mounjaro manufacturer Eli Lilly, said in a statement that users should "talk to their health care provider about dosage and duration needs."
"There's no standard of care or gold standard on how to wean right now," said Allison Adams, an obesity and internal medicine doctor with UK HealthCare in Kentucky.
But the math shows why time-limited coverage is appealing to payers that struggle to pay for beneficiaries' GLP-1 prescriptions, said Michelle Gourdine, chief medical officer for the pharmacy benefit manager CVS Caremark.
And states are "between a rock and a hard place," said Kody Kinsley, who until January led North Carolina's Health and Human Services Department. "They're going to have to look at every single thing and trim dollars everywhere they can."
Pennsylvania was looking for cost-saving strategies even before the new federal tax-and-spending law, according to Brandon Cwalina, press secretary for the state's Department of Human Services. Pennsylvania projects it will spend $1.3 billion on GLP-1 drugs this year.
Plans could see real savings, Fendrick said, if they covered GLP-1s for initial weight loss then moved people to cheaper options — such as more affordable drugs or behavioral health programs — to maintain it.
Plenty of companies are eager to sell insurers, employers, and individuals on behavioral alternatives. One is Virta Health, which advertises its nutrition-focused weight management program as "a proven approach for deprescribing GLP-1s when clinically appropriate." A Virta-funded study assessed 154 people with Type 2 diabetes who stopped using GLP-1 medications but continued following Virta's program, concluding that their weight did not significantly increase after a year.
Researchers affiliated with a European weight management company also recently reported that slowly tapering off the medications may help maintain weight loss.
For employers and insurers, the "initial question" was whether to cover GLP-1s for obesity, said Virta CEO Sami Inkinen. "Now, basically, everyone's coming to the middle and asking, ‘How do we responsibly cover these drugs?'"
Part of responsible coverage, Inkinen said, is providing other forms of support to patients who stop using GLP-1 medications, by choice or otherwise.
For some people, however, maintaining weight loss without a GLP-1 remains a challenge, even with other options available.
Lily, who lives in Michigan, lost almost 80 pounds in roughly 18 months on Wegovy. But she had to quit the drug when she turned 26 and left her parents' insurance plan this year. The plan her employer offers stopped covering GLP-1s for weight loss right around the time she joined.
Lily, who asked to be identified by only her first name because she is not out to her family as transgender, has tried other medications since then, and previously tried lifestyle programs to control her weight. But she said nothing works as well for her as Wegovy.
She has regained 20 pounds since going off the drug at the beginning of the year and worries that number will continue to rise, potentially contributing to future health problems.
"Just give people the drugs," she said. "It seems cheaper and safer in the long run."
It makes sense to approach some marketing efforts with skepticism. Scams, deepfakes, and deceptive social media posts are common, with people you don't know seeking to profit from your behavior.
But should people extend this same skepticism to pediatricians who advise vaccines for children? Health and Human Services Secretary Robert F. Kennedy Jr. said financial bonuses are driving such recommendations.
"Doctors are being paid to vaccinate, not to evaluate," Kennedy said in an Aug. 8 video posted on the social platform X. "They're pressured to follow the money, not the science."
A close look at the process by which vaccines are administered shows pediatric practices make little profit — and sometimes lose money — on vaccines. Four experienced pediatricians told us evidence-based science and medicine drive pediatricians' childhood vaccination recommendations. Years of research and vaccine safety data also bolster these recommendations.
Christoph Diasio, a pediatrician at Sandhills Pediatrics in North Carolina, said the argument that doctors profit off vaccines is counterintuitive.
"If it was really about all the money, it would be better for kids to be sick so you'd see more sick children and get to take care of more sick children, right?" he said.
Is Your Pediatrician Profiting Off Childhood Vaccines?
It costs money to stock, store, and administer a vaccine.
Pediatricians sometimes store thousands of dollars' worth of vaccines in specialized medical-grade refrigeration units, which can be expensive. They pay to insure vaccines in case anything happens to them. Some practices buy thermostats that monitor vaccines' temperature and backup generators to run the refrigerators in the event of a power outage. They also pay nursing staff to administer vaccines.
"Vaccines are hugely expensive," said Jesse Hackell, a retired general pediatrician and the chair of the American Academy of Pediatrics' Committee on Pediatric Workforce. "We lay out a lot of money up front."
When a child with private insurance gets a vaccine, the pediatrician is paid for the vaccine product and its administration, Hackell said.
Many pediatricians also participate in a federal program that provides vaccines free of charge to eligible children whose parents can't afford them. Participating in that program isn't profitable because even though they get the vaccines for free, pediatricians store and insure them, and Medicaid reimbursements often don't cover the costs. But many choose to participate and provide those vaccines anyway because it's valuable for patients, Hackell said.
When discussing vaccine recommendations, pediatricians don't make different recommendations based on how or if a child is insured, he said.
Jason Terk, a pediatrician at Cook Children's Health Care System in Texas, said a practice's ability to make a profit on vaccines depends on its situation.
Terk's practice is part of a larger pediatric health care system, which means it doesn't lose money on vaccines and makes a small profit, he said. Some small independent practices might not be able to secure terms with insurance companies that adequately pay for vaccines.
Suzanne Berman, a pediatrician at Plateau Pediatrics, a rural health clinic in Crossville, Tennessee, said that 75% of her practice's patients have Medicaid and qualify for the Vaccines for Children program, which the practice loses money on. When she factored in private insurance companies' payments, she estimated her practice roughly breaks even on vaccination.
"The goal is to not lose money on vaccines," Terk said.
So What's Driving Your Pediatrician's Vaccine Recommendations?
Pediatricians typically recommend parents vaccinate their children following either the American Academy of Pediatrics' or the Centers for Disease Control and Prevention's recommended vaccine schedule.
Diasio said the driving force behind pediatric vaccine recommendations is straightforward: Trained physicians have seen kids die of vaccine-preventable diseases.
"I saw kids who died of invasive pneumococcal disease, which is what the Prevnar vaccine protects against," Diasio said. "We remember those kids; we wouldn't wish that on anyone."
Still, your pediatrician will consider your child's health holistically before making vaccine recommendations.
For example, a few children — less than 1% — have medical reasons they cannot receive a particular vaccine, Hackell said. This could include children with severe allergies to certain vaccine components or children who are immunosuppressed and could be at higher risk from live virus vaccines such as the measles or chickenpox vaccine.
"When people have questions about whether their kids should get vaccines, they really need to talk to their child's doctor," Diasio said. "Don't get lost down a rabbit hole of the internet or on social media, which is programmed and refined to do whatever it can to keep you online longer."
Amy Frank said it took 17 hours on the phone over nearly three weeks, bouncing between her insurer and her local hospital system, to make sure her plan would cover her husband's post-surgery care.
Many of her calls never got past the hold music. When they did, the hospital told her to call her insurer. The insurer told her to have the hospital fax a form to a special number. The hospital responded that they'd been instructed to send faxes to a different number.
"It was just a big loophole we were caught in, going around and around," Frank said.
Frank and her husband, Allen, faced that ellipse of frustration because they were among 90,000 central Missouri patients caught in the middle of a contract dispute between University of Missouri, or MU, Health Care, a Columbia, Missouri-based health system, and Anthem, the couple's health insurance provider. The companies let their contract expire in April after failing to strike a deal to keep the hospital system and its clinics in-network.
A growing number of Americans find themselves in a similar pinch. In New York City, negotiations between UnitedHealthcare and Memorial Sloan Kettering Cancer Center missed a June 30 deadline, briefly leaving some patients in limbo until a deal was reached the next day. In North Carolina, Duke Health recently announced it could leave the Aetna network unless the insurance company agreed to pay more favorable rates to the health system. And the Franks were nearly caught out-of-network previously, when a 2023 contract dispute between Anthem and a primary care group in Jefferson City, Missouri, prompted the couple to switch some providers to MU Health Care.
Indeed, 18% of non-federal hospitals experienced at least one documented case of public brinksmanship with an insurance company from June 2021 to May 2025, according to preliminary findings by Jason Buxbaum, a health policy researcher at the Brown University School of Health. Over the same period, 8% of hospitals ultimately went out-of-network with an insurer, at least for a time.
Industry observers say long-standing trends like hospital consolidation and rising health care costs contribute to the disputes, and Trump administration policies could make them more frequent as hospitals brace for about $1 trillion in cuts to federal health care spending as part of President Donald Trump's sweeping budget law.
"They're going to be more hard-nosed at negotiating with the health plans because they're going to be in a survival mode," said John Baackes, a retired insurance executive and former board member of America's Health Insurance Plans, the national trade group representing the health insurance industry.
During the three-month stalemate between the insurer and the health system in Missouri, patients with Anthem plans lost in-network coverage with the region's largest — and, for some specialties, only — medical provider.
Most people were unable to switch insurance midyear and faced the choice of paying higher prices upfront, delaying care, finding new providers, or running a paperwork gauntlet in hopes their medical conditions qualified for a 90-day coverage extension.
The dispute came at a particularly inconvenient time for the Franks. Allen Frank was recovering from complications from falling off the roof while cleaning the siding of the couple's home in Rich Fountain in October. When it happened, Amy drove him 24 miles to the nearest emergency room. The facility in Jefferson City had recently been taken over by MU Health Care, and Allen was soon transferred 30 miles farther by ground ambulance to the system's main hospital in Columbia for surgery to insert two metal plates and several screws to repair his collarbone.
Health care consolidation has been booming nationwide for 30 years, with over 2,000 hospital mergers announced since 1998, including 428 from 2018 to 2023. Mergers may lead to some efficiencies and benefits for consumers, but they also reduce market competition and strengthen the hand of hospitals in negotiations with insurers.
"Insurer markets have been consolidated for a long time," Brown's Buxbaum said. "What's changed is how consolidated the hospital markets have become."
Now if a hospital system drops out of a network, he said, "it's not just going to be one key hospital. It's much more likely to be all the key facilities, or many of the critical mass of providers" in an area.
It's a scary prospect for patients, making the public threat of a rupture a potent tool in negotiations between hospitals and insurers. That typically works in a hospital's favor, Baackes said, "because the general assumption is the insurance is being greedy and the hospital is doing God's work."
In a statement, Buddy Castellano, spokesperson for Anthem's parent company, Elevance Health, wrote, "We approach negotiations with a focus on fairness, transparency, and respect for everyone impacted. Health plan rate discussions are complex and require thoughtful collaboration to ensure long-term sustainability. Our commitment remains clear: ensuring access to care while keeping coverage affordable for the families, employers, and communities we serve."
Allen Frank needed follow-up care in the months after his initial surgery, including a second surgery in July.
A federal law dubbed the No Surprises Act, which took effect in 2022, offers protections for some patients whose provider drops out of network due to a contract dispute. People getting treatment for serious conditions can keep their in-network rates for up to 90 days with their current providers, delaying the need to find a new one or face higher rates. So Amy Frank worked the phones to get that continuity of care for her husband.
"Our deductible was already met. If we go out-of-network, we're going to have to start completely over for the out-of-network deductible," she said.
Eventually, Anthem agreed to let Allen Frank continue his care with MU Health Care. But when he showed up for an appointment to get an injection in his injured shoulder, he was told the health system didn't have a record of the approval. He refused to leave without being seen, and, eventually, a nurse was able to get through to Anthem to get a confirmation number and approval for the appointment.
"It's just very frustrating," Amy Frank said in early July, before the sides had reached a deal. "I've got my own medical issues, and I don't feel like mine are bad enough to be fighting for a continuity of care."
In an email, MU Health Care spokesperson Eric Maze wrote: "While our goal was to reach agreement prior to our contract terminating and to avoid disruption in care, we established processes and resources well in advance to facilitate continuity of care and reduce the burden for our patients. We understand and are sorry for the stress and concern being out of network created for many, and we are deeply grateful for the patience and trust placed in us during this time."
Rising health care costs are fueling contract disputes. Hospital expenses grew 5.1% in 2024, according to a recent brief from the American Hospital Association, outpacing the 2.9% inflation rate. Labor costs are the biggest driver, with advertised nursing salaries rising 26.6% faster than inflation from 2020 to 2024, the brief noted.
Hospitals want to recoup those costs by pressing insurance companies to pay more for services.
Washington University in St. Louis health economist Tim McBride said that dynamic could be further enflamed by the massive tax-and-spending law. The measure makes significant cuts to federal health care spending over the next decade, including a $911 billion drop in Medicaid spending, and is expected to cause 10 million Americans to lose their insurance.
As negotiations between MU Health Care and Anthem broke down, the insurer claimed the hospital was seeking a 39% rate increase over three years, while the hospital said the insurer wouldn't budge past 1%-2%.
On June 30, three months into the standoff, the Missouri Senate Insurance and Banking Committee called the two sides in for a hearing that broke months of deadlock and prompted new proposals from Anthem.
"Anthem doubled their rate increase offer," Missouri Senate President Cindy O'Laughlin, a Republican whose district includes parts of central Missouri, wrote in a Facebook post on July 8, encouraging a deal.
"Yes I know that I'm not on the inside nor the CEO of either but from what I've been told this seems a reasonable offer."
The sides announced an agreement one week later that was retroactive to April 1, the day the previous contract expired.
Amy Frank got several texts from friends and family about the agreement. She'd been so vocal about her frustrations, they wanted to make sure she'd seen the news. But her relief was subdued.
"So you put everybody through all of this for nothing?" she said the day after the deal was announced.
She had already sunk hours on the phone to ensure Allen's July 31 surgery to repair the plates holding his clavicle together would be covered. She was in no rush to call her doctors to reschedule the appointments she'd skipped, figuring their phone lines would be busy. The experience had her wondering if the two sides were trying to get people upset as a bargaining tactic.
"That money that they're fighting over — is that really worth all of the stress?" she said.
And after going through two disputes in three years, she can't help but wonder: How long until the next one?
As measles surged in Texas early this year, the Trump administration's actions sowed fear and confusion among CDC scientists that kept them from performing the agency's most critical function — emergency response — when it mattered most, an investigation from KFF Health News shows.
The outbreak soon became the worst the United States has endured in over three decades.
In the month after Donald Trump took office, his administration interfered with Centers for Disease Control and Prevention communications, stalled the agency's reports, censored its data, and abruptly laid off staff. In the chaos, CDC experts felt restrained from talking openly with local public health workers, according to interviews with seven CDC officials with direct knowledge of events, as well as local health department emails obtained by KFF Health News through public records requests.
"CDC hasn't reached out to us locally," Katherine Wells, the public health director in Lubbock, Texas, wrote in a Feb. 5 email exchange with a colleague two weeks after children with measles were hospitalized in Lubbock. "My staff feels like we are out here all alone," she added.
A child would die before CDC scientists contacted Wells.
"All of us at CDC train for this moment, a massive outbreak," one CDC researcher told KFF Health News, which agreed not to name CDC officials who fear retaliation for speaking with the press. "All this training and then we weren't allowed to do anything."
Delays have catastrophic consequences when measles spreads in undervaccinated communities, like many in West Texas. If a person with measles is in the same room with 10 unvaccinated people, nine will be infected, researchers estimate. If those nine go about their lives in public spaces, numbers multiply exponentially.
The outbreak that unfolded in West Texas illustrates the danger the country faces under the Trump administration as vaccination rates drop, misinformation flourishes, public health budgets are cut, and science agencies are subject to political manipulation.
While the Trump administration stifled CDC communications, health secretary Robert F. Kennedy Jr. fueled doubt in vaccines and exaggerated the ability of vitamins to ward off disease. Suffering followed: The Texas outbreak spread to New Mexico, Oklahoma, Kansas, Colorado, and Mexico's Chihuahua state — at minimum. Together these linked outbreaks have sickened more than 4,500 people, killed at least 16, and levied exorbitant costs on hospitals, health departments, and those paying medical bills.
"This is absolutely outrageous," said Jennifer Nuzzo, director of the Pandemic Center at Brown University. "When you're battling contagious diseases, time is everything."
'The CDC Is "Stressed" Currently'
Wells was anxious the moment she learned that two unvaccinated children hospitalized in late January had the measles. Hospitals are legally required to report measles cases to health departments and the CDC, but Wells worried many children weren't getting tested.
"I think this may be very large," she wrote in a Feb. 3 email to the Texas Department of State Health Services. Wells relayed in another email what she'd learned from conversations around town: "According to one of the women I spoke with 55 children were absent from one school on 1/24. The women reported that there were sick children with measles symptoms as early as November."
In that email and others, Wells asked state health officials to put her in touch with CDC experts who could answer complicated questions on testing, how to care for infants exposed to measles, and more. What transpired was a plodding game of telephone.
One email asked whether clinics could decontaminate rooms where people with measles had just been if the clinics were too small to follow the CDC's recommendation to keep those rooms empty for two hours.
"Would it be possible to arrange a consultation with the CDC?" Wells wrote on Feb. 5.
"It never hurts to ask the CDC," said Scott Milton, a medical officer at the Texas health department. About 25 minutes later, he told Wells that an information specialist at the CDC had echoed the guidelines advising two hours.
"I asked him to escalate this question to someone more qualified," Milton wrote. "Of course, we know the CDC is 'stressed' currently."
A Feb. 5 email from Texas health official Scott Milton, obtained through a public records request. He wanted to reach scientists at the Centers for Disease Control and Prevention who could answer urgent questions about measles from front-line workers in West Texas. Emails have been redacted to protect the privacy of individuals and facilities.(Screenshot by KFF Health News)
Local officials resorted to advice from doctors and researchers outside the government, including those at the Immunization Partnership, a Texas nonprofit.
"The CDC had gone dark," said Terri Burke, executive director of the partnership. "We had anticipated a measles outbreak, but we didn't expect the federal government to be in collapse when it hit."
Technically, the Trump administration's freeze on federal communications had ended Feb. 1. However, CDC scientists told KFF Health News that they could not speak freely for weeks after.
"There was a lot of confusion and nonanswers over what communications were allowed," one CDC scientist said.
Georges Benjamin, executive director of the American Public Health Association, said the situation was not unique to measles. "Like most public health organizations, we weren't able to get ahold of our program people in February," he said. Information trickled out through the CDC's communications office, but CDC scientists gave no press briefings and went dark on their closest partners across the country. "The CDC was gagged," he said.
Through private conversations, Benjamin learned that CDC experts were being diverted to remove information from websites to comply with executive orders. And they were afraid to resume communication without a green light from their directors or the Department of Health and Human Services as they watched the Trump administration lay off CDC staffers in droves.
"It's not that the CDC was delinquent," Benjamin said. "It's that they had their hands tied behind their backs."
To work on the ground, the CDC needs an invitation from the state. But Anne Schuchat, a former CDC deputy director, said that during her 33 years with the agency, federal health officials didn't need special permission to talk freely with local health departments during outbreaks. "We would always offer a conversation and ask if there's anything we could do," she said.
Lara Anton, a press officer at the Texas health department, said the state never prevented the CDC from calling county officials. To learn more about the state's correspondences with the CDC, KFF Health News filed a public records request to the Texas health department. The department refused to release the records. Anton called the records "confidential under the Texas Health and Safety Code."
Anton said the state sent vaccines, testing supplies, and staff to assist West Texas in the early weeks of February. That's corroborated in emails from the South Plains Public Health District, which oversees Gaines County, the area hit hardest by measles.
"Texas will try to handle what it needs to before it goes to the CDC," Zach Holbrooks, the health district's executive director, told KFF Health News.
Responding to an outbreak in an undervaccinated community, however, requires enormous effort. To keep numbers from exploding, public health workers ideally would notify all people exposed to an infected person and ask them to get vaccinated immediately if they weren't already. If they declined, officials would try to persuade them to avoid public spaces for three weeks so that they wouldn't spread measles to others.
Holbrooks said this was nearly impossible. Cases were concentrated in close-knit Mennonite communities where people relied on home remedies before seeking medical care. He said many people didn't want to be tested, didn't want to name their contacts, and didn't want to talk with the health department. "It doesn't matter what resources I have if people won't avail themselves of it," Holbrooks said.
Historically, Mennonites faced persecution in other countries, making them leery of interacting with authorities, Holbrooks said. A backlash against covid restrictions deepened that mistrust.
Another reason Mennonites may seek to avoid authorities is that some live in the U.S. illegally, having immigrated to Texas from Canada, Mexico, and Bolivia in waves over the past 50 years. Locals guess the population of Seminole, the main city in Gaines County, is far larger than the U.S. Census count.
"I have no idea how many cases we might have missed, since I don't know how many people are in the community," Holbrooks said. "There's a lot of people in the shadows out here."
Public health experts say the situation in Gaines sounds tough but familiar. Measles tends to take hold in undervaccinated communities, and therefore public health workers must overcome mistrust, misinformation, language barriers, and more.
A Feb. 3 email from Katherine Wells to a Texas state health official, Imelda Garcia, warning of a far larger measles outbreak than case numbers suggested. KFF Health News obtained emails through Freedom of Information Act requests to local health departments. The emails have been redacted to protect the privacy of individuals and facilities.(Screenshot by KFF Health News)
About 450 people — including local health officials, CDC scientists, nurses, and volunteers — helped control a measles outbreak sparked in an Eastern European immigrant community in Clark County, Washington, in 2018.
Alan Melnick, Clark County's public health director, said his team spoke with hundreds of unvaccinated people who were exposed. "We were calling them basically every day to see how they were doing and ask them not to go out in public," he said.
Melnick spoke with CDC scientists from the start, and the intensity of the response was buoyed by emergency declarations by the county and the state. Within a couple of months, the outbreak was largely contained. No one died, and only two people were hospitalized.
In New York, hundreds of people in the city's health department responded to a larger measles outbreak in 2018 and 2019 concentrated among Orthodox Jewish communities. The work included meeting with dozens of rabbis and distributing booklets to nearly 30,000 households to combat vaccine misinformation.
The effort cost more than $7 million, but Jane Zucker, New York City's assistant health commissioner at the time, said it yielded immense savings. The average medical bill for measles hospitalizations is roughly $18,500, according to data from prioroutbreaks. Then there's the cost of diverting hospital resources, of children missing school, of parents staying home from work to care for sick kids, and the lasting toll of some measles infections, including deafness or worse.
"I don't think there's a price tag to put on a child's death that would otherwise be prevented," Zucker said.
Local health departments in West Texas were understaffed from the start. About 18 people work at the South Plains health department, which oversees four vast rural counties. About 50 staff the department in Lubbock, where patients were hospitalized and health workers struggled to figure out who was exposed. In mid-February, Wells emailed a colleague: "I'm so overwhelmed."
A Death Ignites a Response
On Feb. 26, Texas announced that a 6-year-old child had died of measles. Wells heard from CDC scientists for the first time the following day. Also that day, the CDC issued a brief notice on the outbreak. The notice recommended vaccines, but it worried public health specialists because it also promoted vitamin A as a treatment under medical supervision.
In emails, Texas health officials privately discussed how the CDC's notice might exacerbate a problem: Doctors were treating children with measles for toxic levels of vitamin A, suggesting that parents were delaying medical care and administering the supplements at home. A local Lubbock news outlet reported on a large drugstore where vitamin A supplements and cod liver oil, which contains high levels of vitamin A, were "flying off the shelf."
Too much vitamin A can cause liver damage, blindness, and dire abnormalities during fetal development.
A March 9 email from Katherine Wells announcing the arrival of CDC scientists in Lubbock, Texas, some six weeks after the first cases were detected. Emails obtained by KFF Health News have been redacted to protect the privacy of individuals and facilities.(Screenshot by KFF Health News)
Milton worried that parents were listening to misinformation from anti-vaccine groups — including one founded by Kennedy — that diminished the need for vaccination by inaccurately claiming that vitamin A staved off the disease's worst outcomes.
"How many people will choose Vitamin A and not a vaccine because it appears to them there are two options?" Milton asked in an email.
Scientists at the CDC privately fretted, too. "HHS pressed us to insert vitamin A into all of our communications with clinicians and health officials," one CDC scientist told KFF Health News, referring to the agency's notices and alerts. "If pregnant women took too much vitamin A during the outbreak, their babies could be profoundly disabled. We haven't seen those babies born yet."
Another CDC official said they've had to "walk a fine line" between protecting the public based on scientific evidence and aligning with HHS.
While CDC scientists held their tongues, Kennedy exaggerated the power of nutrition and vitamin A while furthering mistrust in vaccines. "We're providing vitamin A," Kennedy said in an interview on Fox News. "There are many studies, some showing 87% effectiveness," he claimed, "against serious disease and death."
The studies Kennedy referenced were conducted in low-income countries where children are malnourished. Evidence suggests that vitamin A supplementation is seldom useful against measles in the United States, because deficiency is exceedingly rare.
Kennedy deflected criticism from those who call him anti-vaccine, saying that any parent in Texas who wants a measles vaccine can get one. He followed this with dangerously inaccurate statements. "There are adverse events from the vaccine. It does cause deaths every year," he said. "It causes all the illnesses that measles itself causes, encephalitis and blindness, et cetera." There is no evidence that measles vaccines "cause deaths every year." Scores of studies show that the vaccine doesn't cause encephalitis, that most potential side effects resolve quickly on their own, and serious adverse reactions are far rarer than measles complications.
In another interview, Kennedy said, "The MMR vaccine contains a lot of aborted fetus debris." The measles, mumps, and rubella, or MMR, vaccine does not contain an iota of fetal cells.
HHS spokesperson Andrew Nixon and spokespeople at the CDC did not respond to queries from KFF Health News.
'Staff Are Exhausted'
Despite national attention after the country's first measles death in a decade, West Texas was overwhelmed. In late February and March, hospital administrators and health officials exchanged emails about how to lobby for resources.
"Local hospitals are at capacity," wrote Jeffrey Hill, a senior vice president at the University Medical Center Health System in Lubbock. "The state reports emergency funds that typically cover a response like the measles outbreak are not available from the federal government right now," he added.
"I am writing to express our urgent need for additional staff and funding," Ronald Cook, medical director for Lubbock, said in an email, drafted with other Lubbock health authorities, to the deputy city manager. "Our Capacity is Stretched Thin: The health department has been operating seven days a week since February 2nd. Staff are exhausted."
The city of Lubbock fronted money to help the local health department hire temporary staff. The state did not provide money, but it asked the CDC to send epidemiologists. Some came to Texas in early March. Then Texas requested federal funds.
None arrived, even as the outbreak approached 500 cases. It spread to Mexico when an unvaccinated Mennonite child returned home after visiting family in Seminole. This would fuel the largest outbreak Mexico has seen in decades, with at least 3,700 cases and 13 deaths in the state of Chihuahua.
In a rare moment of openness, CDC scientist David Sugarman mentioned the outbreak at a vaccine advisory meeting in late April. "There are quite a number of resource requests coming in, in particular from Texas," Sugarman said. "We are scraping to find the resources and personnel needed to provide support to Texas and other jurisdictions."
Federal funds arrived in Texas on May 21, said Anton, the state health department spokesperson. By then, the crisis was fading. The outbreak seemed to have burned until every unvaccinated person in Seminole was infected, said Richard Eby, a doctor at Permian Regional Medical Center who treated some measles patients. Hundreds, if not thousands, of cases have probably gone undetected, he said. "A lot of people presumed their kids had measles," he said, "and didn't see the need to confirm it."
On Aug. 18, health officials declared the West Texas outbreak over, but the consequences of the catastrophe will be lasting.
The outbreaks it sparked across the U.S. and Mexico are still spreading.
More are inevitable, Nuzzo said. A growing number of parents are deciding not to vaccinate their kids, worried over unfounded rumors about the shots. Misinformation is flourishing, especially after Kennedy fired vaccine experts who advise the CDC and replaced them with doctors and researchers on the fringes of the scientific establishment. For example, one of his recent appointees, Robert Malone, blamed the deaths of children with measles on "medical mismanagement," without evidence.
At the same time, states are downsizing programs for emergency response, disease surveillance, and immunization after the Trump administration clawed back more than $11 billion in public health funds earlier this year.
Amid Lubbock's toughest months, Wells sent an email to the department's exhausted staff. "The future is uncertain, and I know this is an unsettling time for many of us," she wrote. "Every day we show up and do our jobs is an act of resilience."
The Trump administration's cuts to Centers for Disease Control and Prevention funding for state and local health departments had vastly uneven effects depending on the political leanings of a state, according to a KFF Health News analysis. Democratic-led states and select blue-leaning cities fought back in court and saw money for public health efforts restored — while GOP-led states sustained big losses.
The Department of Health and Human Services in late March canceled nearly 700 Centers for Disease Control and Prevention grants nationwide — together worth about $11 billion. Awarded during the covid-19 pandemic, they supported efforts to vaccinate people, reduce health disparities among demographic groups, upgrade antiquated systems for detecting infectious disease outbreaks, and hire community health workers.
Initially, grant cancellations hit blue and red states roughly evenly. Four of the five jurisdictions with the largest number of terminated grants were led by Democrats: California, the District of Columbia, Illinois, and Massachusetts.
But after attorneys general and governors from about two dozen blue states sued in federal court and won an injunction, the balance flipped. Of the five states with the most canceled grants, four are led by Republicans: Texas, Georgia, Oklahoma, and Ohio.
In blue states, nearly 80% of the CDC grant cuts have been restored, compared with fewer than 5% in red states, according to the KFF Health News analysis. Grant amounts reported in an HHS database known as the Tracking Accountability in Government Grants System, or TAGGS, often don't match what states confirmed. Instead, this analysis focused on the number of grants.
The divide is an example of the polarization that permeates health care issues, in which access to safety-net health programs, abortion rights, and the ability of public health officials to respond to disease threats diverge significantly depending on the political party in power.
In an emailed statement, HHS spokesperson Andrew Nixon said the agency "is committed to protecting the health of every American, regardless of politics or geography. These funds were provided in response to the COVID pandemic, which is long over. We will continue working with states to strengthen public health infrastructure and ensure communities have the tools they need to respond to outbreaks and keep people safe."
The money in question wasn't spent solely on covid-related activities, public health experts say; it was also used to bolster public health infrastructure and help contain many types of viruses and diseases, including the flu, measles, and RSV, or respiratory syncytial virus.
"It really supported infrastructure across the board, particularly in how states respond to public health threats," said Susan Kansagra, chief medical officer of the Association of State and Territorial Health Officials.
The Trump cutbacks came as the U.S. recorded its largest measles outbreak in over three decades and 266 pediatric deaths during the most recent flu season — the highest reported outside of a pandemic since 2004. Public health departments canceled vaccine clinics, laid off staff, and put contracts on hold, health officials said in interviews.
After its funding cuts were blocked in court, California retained every grant the Trump administration attempted to claw back, while Texas remains the state with the most grants terminated, with at least 30. As the CDC slashed grants in Texas, its measles outbreak spread across the U.S. and Mexico, sickening at least 4,500 people and killing at least 16.
Colorado, which joined the lawsuit, had 11 grant terminations at first, but then 10 were retained. Meanwhile, its neighboring states that didn't sue — Wyoming, Utah, Kansas, Nebraska, and Oklahoma — collectively lost 55 grants, with none retained.
In Jackson, Ohio, a half-dozen community health workers came to work one day in March to find the Trump administration had canceled their grant five months early, leaving the Jackson County Health Department half a million dollars short — and them without jobs.
"I had to lay off three employees in a single day, and I haven't had to do that before. We don't have those people doing outreach in Jackson County anymore," Health Commissioner Kevin Aston said.
At one point, he said, the funding helped 11 Appalachian Ohio counties. Now it supports one.
Marsha Radabaugh, one employee who was reassigned, has scaled back her community health efforts: She'd been helping serve hot meals to homeless people and realized that many clients couldn't read or write, so she brought forms for services such as Medicaid and the Supplemental Nutrition Assistance Program to their encampment in a local park and helped fill them out.
"We would find them rehab places. We'd get out hygiene kits, blankets, tents, zero-degree sleeping bags, things like that," she said. As a counselor, she'd also remind people "that they're cared for, that they're worthy of being a human — because, a lot of the time, they're not treated that way."
Sasha Johnson, who led the community health worker program, said people like Radabaugh "were basically a walking human 411," offering aid to those in need.
Radabaugh also partnered with a food bank to deliver meals to homebound residents.
Aston said the abrupt way they lost the funds — which meant the county unexpectedly had to pay unemployment for more people — could have ruined the health district financially. Canceling funding midcycle, he said, "was really scary."
HHS Secretary Robert F. Kennedy Jr., a longtime anti-vaccine activist and promoter of vaccine misinformation, has called the CDC a "cesspool of corruption." At HHS, he has taken steps to undermine vaccination in the U.S. and abroad.
Federal CDC funding accounts for more than half of state and local health department budgets, according to KFF, a health information nonprofit that includes KFF Health News. States that President Donald Trump won in the 2024 election received a higher share of the $15 billion the CDC allocated in fiscal 2023 than those that Democrat Kamala Harris won, according to KFF.
The Trump administration's nationwide CDC grant terminations reflect this. More than half were in states that Trump won in 2024, totaling at least 370 terminations before the court action, according to KFF Health News' analysis.
The Columbus, Ohio, health department had received $6.2 million in CDC grants, but roughly half of it — $3 million — disappeared with the Trump cuts. The city laid off 11 people who worked on investigating infectious disease outbreaks in such places as schools and nursing homes, Columbus Health Commissioner Mysheika Roberts said.
She also said the city had planned to buy a new electronic health record system for easier access to patients' hospital records — which could improve disease detection and provide better treatment for those infected — but that was put on ice.
"We've never had a grant midcycle just get pulled from us for no reason," Roberts said. "This sense of uncertainty is stressful."
Columbus did not receive its money directly from the CDC. Rather, the state gave the city some funds it received from the federal government. Ohio, led by Republican Gov. Mike DeWine and a Republican attorney general, did not sue to block the funding cuts.
Columbus sued the federal government in April to keep its money, along with other Democratic-led municipalities in Republican-governed states: Harris County, Texas, home to Houston; the Metropolitan Government of Nashville and Davidson County in Tennessee; and Kansas City, Missouri. A federal judge in June blocked those cuts.
As of mid-August, Columbus was awaiting the funds. Roberts said the city won't rehire staff because the federal funding was expected to end in December.
Joe Grogan, a senior scholar at the University of Southern California's Schaeffer Institute and former director of the White House Domestic Policy Council in Trump's first term, said state and local agencies "are not entitled" to the federal money, which was awarded "to deal with an emergency" that has ended.
"We were throwing money out the door the last five years," Grogan said of the federal government. "I don't understand why there would ever be a controversy in unspent covid money coming back."
Ken Gordon, Ohio Department of Health spokesperson, wrote in an email that the $250 million in grants lost had helped with, among other things, upgrading the disease reporting system and boosting public health laboratory testing.
Some of the canceled HHS funding wasn't slated to end for years, including four grants to strengthen public health in Indian Country, a grant to a Minnesota nonprofit focused on reducing substance use disorders, and a few to universities about occupational safety, HIV, tuberculosis, and more.
Brent Ewig, chief policy and government relations officer for the Association of Immunization Managers, said the cuts were "the predictable result of ‘boom, bust, panic, neglect' funding" for public health.
The association represents 64 state, local, and territorial immunization programs, which Ewig said will be less prepared to respond to disease outbreaks, including measles.
"The system is blinking red," Ewig said.
Methodology
KFF Health News' analysis of Centers for Disease Control and Prevention grants sought to answer four questions: 1) How many grants have been terminated in the U.S. under the Trump administration since March? 2) Which states saw the most grants cut? 3) What were the grants for? and 4) Did the grant terminations affect blue, red, and purple states differently? This follows a similar analysis by KFF Health News for an article on nationwide NIH grant terminations.
Our primary data source was a Department of Health and Human Services website showing grant terminations. We compared an initial list of grant terminations from April 3 with one from July 11 to determine how many grants had been restored. The USAspending.gov database helped us track grants by state.
To classify states politically, we followed the same steps from our April coverage of National Institutes of Health grant terminations. States were "blue" if Democrats had complete control of the state government or if the majority of voters favored Democratic presidential candidates in the last three elections (2016, 2020, 2024). "Red" states were classified similarly with respect to the Republican Party. "Purple" states had politically split state governments and/or were generally considered to be presidential election battleground states. The result was 25 red states, 17 blue states, and eight purple states. The District of Columbia was classified as blue using similar methods.
This analysis does not account for potential grant reinstatements in local jurisdictions where the funds were awarded indirectly rather than directly from the CDC; it accounts only for the recipients' location, and excludes grants terminated from Compacts of Free Association states and other foreign entities that received grants directly from the CDC. At least 40 CDC grants were terminated that were meant for global health efforts or assisting public health activities in other nations following the Trump administration's order for the CDC to withdraw support for the World Health Organization.